Chief Executive

Lindsey has over 25 years’ experience of working in the voluntary health sector. She joined Sarcoma UK in 2010 as our first Chief Executive (and first member of staff). She has overseen the significant growth in profile and income of the charity and the delivery of our first Strategy: “Transforming the Landscape for Sarcoma 2014-2020.”

Lindsey previously worked in a senior role at Prostate Cancer UK for 7 years where she was responsible for a team delivering research, information & support, policy & campaigning, health professional education and marketing communications. 

Lindsey is a trustee of the British Sarcoma Group (the professional association of the specialist clinicians, nurses and supporting professionals who treat patients with sarcoma in the UK). She is also a Fellow of the RSA (Royal Society for the encouragement of Arts, Manufactures and Commerce).

Director of Fundraising

Lucy leads our fundraising team and develops strategies to inspire supporters to donate to Sarcoma UK, making sure we can continue to fund research, raise awareness and provide support and information.

She started her fundraising career in higher education, working for universities in Glasgow and London for a decade before joining Sarcoma UK in 2016.

In her spare time, Lucy likes cooking, skiing, and starting sewing and knitting projects which somehow never seem to get finished. 

IT & Database Manager

Joining Lindsey in 2010, Lorena set up our new head office in London.  With her background in office management and operations, Lorena keeps our day-to-day business running smoothly. 

Lorena is our IT guru, implementing and managing Raisers Edge as well as designing and restructuring our office layout to fit in our ever increasing staff team!

Guitar Hero, Teaching Spanish and London Mews are a few of her favourite things!

Sarcoma Specialist Nurse - Support Line

Sam is our first nurse specialist. She comes to us having worked with sarcoma patients for 17 years at the Royal Marsden Hospital and before that she worked with teenagers and young adults with sarcoma at UCH.

Sam is passionate that all patients with a sarcoma diagnosis have access to a specialist nurse and team to be able to support them through the best option for them. 

Sam has recently been part of the European consensus group for demoid tumours and was a specialist advisor for NICE standard for improving care for sarcoma patients.

Sam is often found on her bike training for long distance rides like to London to Paris or Somerset to London.  Other passions include baking and Arsenal!

Executive Assistant

Katie joined Sarcoma UK in April 2015, bringing her experience in Business Administration. Working alongside Karen and Lorena in the operations team, she helps to keep the office running smoothly and keeps the whole team in check.

Katie is a green tea and dark chocolate fanatic! In her spare time she enjoys going on adventures and exploring new places, this includes escaping the city for long country walks. 

Head of Information and Support

Claire brings her expertise on information production from the Muscular Dystrophy Campaign.

She is dedicated to developing Sarcoma UK’s support and information initiatives to the benefit of patients and carers, including our accredited booklets. 

Claire is passionate about providing support for the whole sarcoma community, collaborating with our support groups in person, as well as our online chat groups and answering the Support Line  – enabling the community to feel less isolated.

Claire enjoys The Guardian quiz and badge making, and after a long day, she settles down with copious amounts of tea whilst reading dystopian science fiction novels.

Director of Research, Information & Support

Sarah has a keen interest in all things research and science. With a background in both diagnostic pathology and research management she has seen first-hand the effects that research has on scientific discovery and improving patients' diagnosis, treatment and lives. Sarah works with everyone in the sarcoma community to support the charity’s goals: patients, supporters, the Research Advisory Committee (RAC) and the Board of Trustees .

Sarah likes to spend time with her family, cycling round the South Downs and knitting - often fixing the team's jumpers.  She also plays Baritone in the Lewes, Glynde & Beddingham Brass Band, one day she’ll conquer playing The 1812 Overture.  Loves wearing a cardigan!

Fundraising Officer (Trusts & Legacies)

Anna supports the delivery of Sarcoma UK's fundraising strategy with specific focus on trusts and foundations; and legacy giving.  She joined Sarcoma UK in September 2015 as a community fundraiser, after spending several years working in LGBT rights charities both in the UK and overseas.

In her spare time Anna enjoys reading, learning Italian and is a member of her local pub quiz team.

Communications Director

Vicki uses her extensive experience in communications and marketing to raise awareness of sarcoma and our charity.  Having kick-started her career at the other side of the world at The Cancer Council Australia, she worked on various successful fundraising campaigns and events.

Vicki believes in the power of storytelling. She is keen to hear the experiences of the whole sarcoma community to raise awareness and inspire involvement from supporters. As chief of Sarcoma UK’s branding, she amplifies a consistent message across all of the charity’s channels including  print; digital; and social media.

Likes boxing; arts & culture; and Desert Island Discs. Usually travels on two wheels.

Research Grants Officer

Clare joined Sarcoma UK’s research team fresh out of a research lab. She has a background in medical research, both industrial and academic, and a keen interest in all things data. She is currently completing her PhD on diagnostics and immunology of infectious disease at St. Georges University, London.

Clare manages Sarcoma UK’s annual research grant call, working closely with all the researchers and scientists associated with the charity.

She enjoys spending her spare time playing and coaching hockey or going off on a long bike ride and hike followed by mixing up a cocktail or two. 

Sarcoma Specialist Nurse - Support Line Lead

Helen was the first specialist nurse for the Oxford Sarcoma Service and helped to grow the Oxford service from a newly nationally commissioned bone and soft tissue sarcoma service in 2005; leading her to be named The Nursing Times Cancer Nurse Leader of the Year (2010).

Having always advocated for people affected by sarcoma, working with sarcoma patients over the past 18 years (12 of which were in her Advanced Practice role), she brings a wealth of experience to the charity.  Helen looks forward to using her knowledge in sarcoma to help increase the level of expertise to the charity’s Support Line service.

Helen became the founding Chair of the National Sarcoma Forum, a group for health professionals working with sarcoma patients in the UK and passed the Chair over in 2015.

Her husband and two young daughters keep her busy, she looks forward to working in a professional capacity alongside enjoying watching her daughters grow up.

Fundraising Officer (Community & Events)

Kat has previous experience interning and volunteering as a fundraiser with national and local charities, before joining Sarcoma UK in November 2013.  She co-ordinates fundraising events, such as the London Marathon and the Prudential RideLondon-Surrey 100, as well as assisting all the incredible fundraisers supporting Sarcoma UK.

Kat is an avid reader and spends most her commute time digesting novels.  When not out running, or with her nose in a book, she can be found baking (and eating!) lots of cake.


Director of Finance and Resources

Karen is in charge of our charity’s finances.  She has 8 years’ experience of working in the charity sector, her previous position was as Finance Manager at the Sick Children’s Trust before joining us in January 2014.

In her spare time, Karen likes to see friends and family.  She also enjoys going to festivals, combining her love for travelling and live music.