Chief Executive

Lindsey has over 25 years’ experience of working in the voluntary health sector. She joined Sarcoma UK in 2010 as our first Chief Executive (and first member of staff). She has overseen the significant growth in profile and income of the charity and the delivery of our first Strategy: “Transforming the Landscape for Sarcoma 2014-2020.”

Lindsey previously worked in a senior role at Prostate Cancer UK for 7 years where she was responsible for a team delivering research, information & support, policy & campaigning, health professional education and marketing communications. 

Lindsey is a trustee of the British Sarcoma Group (the professional association of the specialist clinicians, nurses and supporting professionals who treat patients with sarcoma in the UK). She is also a Fellow of the RSA (Royal Society for the encouragement of Arts, Manufactures and Commerce).

Director of Research, Information & Support

Sarah has more than two decades of experience within the NHS, research, and health sectors and has led the charity’s diverse research programme since joining in 2014. With a background in both diagnostic pathology and research management she is a passionate supporter of research, having seen the impact it has on scientific discovery and improving patients' diagnosis and treatment, as well as the need for providing support and quality information about sarcoma.

A well-known and respected figure in both the scientific and sarcoma community, Sarah works alongside a wealth of partnering organisations relating to research and sarcoma cancer. These include the Association of Medical Research Charities (AMRC), The National Cancer Research Institute (NCRI), National Cancer Registration and Analysis Service (NCRAS) as well as the charity’s Research Advisory Committee (RAC) and the Board of Trustees.

Under Sarah’s leadership; Sarcoma UK’s research programme has seen significant expansion, she has brought together the sarcoma basic science community and launched our flagship Support Line in February 2016. 

Director of Fundraising

Lucy leads our fundraising team and develops strategies to inspire supporters to donate to Sarcoma UK, making sure we can continue to fund research, raise awareness and provide support and information.

She started her fundraising career in higher education, working for universities in Glasgow and London for a decade before joining Sarcoma UK in 2016.

In her spare time, Lucy likes cooking, skiing, and starting sewing and knitting projects which somehow never seem to get finished. 

IT & Database Manager

Joining Lindsey in 2010, Lorena set up our new head office in London.  With her background in office management and operations, Lorena keeps our day-to-day business running smoothly. 

Lorena is our IT guru, implementing and managing Raisers Edge as well as designing and restructuring our office layout to fit in our ever increasing staff team!

Guitar Hero, Teaching Spanish and London Mews are a few of her favourite things!

Fundraising Officer

After graduating with a degree in Psychology in 2015, Emma started her career in fundraising with a volunteer work experience placement at Sarcoma UK working in the Community Fundraising team. Over the next couple of years, Emma continued to work in charity fundraising while keeping her link with Sarcoma UK , a charity close to her heart.
Emma is delighted to be back with the charity where she builds relationships with grant-making trusts and those leaving a gift in their will.
In her spare time, Emma enjoys seeing musical theatre shows. She can often be found exploring London on days out or walking in the forest near where she lives. She is also a keen baker and enjoys making cakes and treats for the office team.

Information and Support Officer

Donna has six years’ experience working in the NHS. During this time she often worked in collaboration with charities that provided vital support for patients and their families. This experience was part of the inspiration for her career shift into the charity sector. She joined Sarcoma UK as an Information and Support Officer in 2017 a role which encompasses her passion of empowering patients and their families to make decisions about their care through access to information.

Outside of work, Donna enjoys cuddles and walks with her dog Halle. She is also a big foodie and will travel anywhere for a good piece of cake.

Digital Communications Manager

Enda has worked in the digital sector for over 15 years and as a result has a far too large digital footprint.

Before moving to London from Ireland in 2009, he worked as Assitive Technology Advisor at NUI Maynooth where he got to explore the impact of digital tools and social media on learning. In London he has worked as a copyeditor and social media consultant. He first came on to Sarcoma UK's radar in 2015 with the relaunch of the website and he's still here.

Outside of digital stuff, Enda is an Airbnb Superhost and is currently looking for space to accomodate his expanding vinyl collection. 

Sarcoma Specialist Nurse - Support Line

Sam is our first nurse specialist. She comes to us having worked with sarcoma patients for 17 years at the Royal Marsden Hospital and before that she worked with teenagers and young adults with sarcoma at UCH.

Sam is passionate that all patients with a sarcoma diagnosis have access to a specialist nurse and team to be able to support them through the best option for them. 

Sam has recently been part of the European consensus group for demoid tumours and was a specialist advisor for NICE standard for improving care for sarcoma patients.

Sam is often found on her bike training for long distance rides like to London to Paris or Somerset to London.  Other passions include baking and Arsenal!

Executive Officer

Katie joined Sarcoma UK in April 2015, bringing her experience in Business Administration. Working alongside Karen and Lorena in the operations team, she helps to keep the office running smoothly and keeps the whole team in check.

Katie is a green tea and dark chocolate fanatic! In her spare time she enjoys going on adventures and exploring new places, this includes escaping the city for long country walks. 

Head of Information and Support

Claire brings her expertise on information production from the Muscular Dystrophy Campaign.

She is dedicated to developing Sarcoma UK’s support and information initiatives to the benefit of patients and carers, including our accredited booklets. 

Claire is passionate about providing support for the whole sarcoma community, collaborating with our support groups in person, as well as our online chat groups and answering the Support Line  – enabling the community to feel less isolated.

Claire enjoys The Guardian quiz and badge making, and after a long day, she settles down with copious amounts of tea whilst reading dystopian science fiction novels.

Communications Director

Bevis brings with him more than a decade of experience working in media and communications within the third sector. Starting at the press office of international development charity, VSO, to leading the communications team at a leading NHS charity, Imperial Health Charity, he has developed a broad skillset that reflects his passion for the power of communications to do good.

A firm believer in the necessity of research and the impact it has on society, Bevis likes nothing more than creating exciting content for all of our communications channels.

When not working, he can often be seen running races, doing yoga and climbing mountains.

Research Grants Officer

Sarah has a background in medical physics and worked in peer review management at Nature Publishing Group before joining Sarcoma UK. She is passionate about ensuring that the best scientific research gets the funding it deserves. She is fascinated by the way the impact of research is monitored and evaluated, and how these methods are evolving with the use of new technology.

When not in the office, Sarah enjoys writing plays and producing theatre. She is about to start combining her love of technology and live performance by writing scripts for virtual reality.

Sarcoma Specialist Nurse - Support Line Lead

Helen was the first specialist nurse for the Oxford Sarcoma Service and helped to grow the Oxford service from a newly nationally commissioned bone and soft tissue sarcoma service in 2005; leading her to be named The Nursing Times Cancer Nurse Leader of the Year (2010).

Having always advocated for people affected by sarcoma, working with sarcoma patients over the past 18 years (12 of which were in her Advanced Practice role), she brings a wealth of experience to the charity.  Helen looks forward to using her knowledge in sarcoma to help increase the level of expertise to the charity’s Support Line service.

Helen became the founding Chair of the National Sarcoma Forum, a group for health professionals working with sarcoma patients in the UK and passed the Chair over in 2015.

Her husband and two young daughters keep her busy, she looks forward to working in a professional capacity alongside enjoying watching her daughters grow up.

Fundraising Officer (Community & Events)

Kat has previous experience interning and volunteering as a fundraiser with national and local charities, before joining Sarcoma UK in November 2013.  She co-ordinates fundraising events, such as the London Marathon and the Prudential RideLondon-Surrey 100, as well as assisting all the incredible fundraisers supporting Sarcoma UK.

Kat is an avid reader and spends most her commute time digesting novels.  When not out running, or with her nose in a book, she can be found baking (and eating!) lots of cake.


Director of Finance and Resources

Karen is in charge of our charity’s finances.  She has 8 years’ experience of working in the charity sector, her previous position was as Finance Manager at the Sick Children’s Trust before joining us in January 2014.

In her spare time, Karen likes to see friends and family.  She also enjoys going to festivals, combining her love for travelling and live music.