Sarcomas are uncommon cancers of the soft tissue and bone and can occur anywhere in the body.
We know there are a multitude of issues around sarcoma cancer in the UK that can have a devastating impact on patients and their families, from poor awareness of the cancer, late or incorrect diagnoses, to outdated treatments that are few and far between.
Our policy team work to address these issues by influencing change at the highest levels. We present policymakers with constructive recommendations to improve the experiences of people affected by sarcoma, from diagnosis to post-treatment.
Our policy priorities are based on the voices of our supporters. This includes what you told us in the National Sarcoma Survey and our Unique Among Cancers report.
Our policy priorities
Earlier and more accurate diagnosis for people with sarcoma
Anyone with the signs and symptoms of sarcoma needs to be seen as early as possible and referred to services that can quickly and accurately confirm the diagnosis. Doing this can save lives.
All sarcoma patients have access to the best possible care in the UK
Getting patients treated by experts who have experience of treating and managing sarcomas is crucial. All patients with suspected or confirmed sarcoma must have their treatment agreed by a specialist multi-disciplinary team (MDT) at a sarcoma centre, sometimes jointly with age-appropriate teams or those that focus on a particular part of the body, to ensure they receive the most appropriate and best possible care.
Push for better access to the appropriate psychological support for sarcoma patients and their carers
Sarcoma can be extremely mentally challenging not just for patients, but for those who love and care for them. All sarcoma patients and their loved ones should have access to timely and appropriate psychological support, from diagnosis to post-treatment.
