Glyn is CEO and co-founder of the strategic content and communications agency Touchline, which works for international organisations such as the International Olympic Committee, the World Health Organization, UEFA, World Rugby and the World Trade Organization.
After surgery to remove a myxoid liposarcoma in January 2011 – the same month that Sarcoma UK was launched – he joined the charity’s Board of Trustees, initially motivated by his personal experience and a desire to see better information and more support for everyone affected by sarcoma.
He became Chair of Trustees in October 2017 and says: “Sarcoma UK is at a hugely exciting stage of development, with impressive and sustained year-on-year growth and a newly-refreshed strategy. The Board is focussed on delivering its mission to fund ground-breaking research, support people with sarcoma, and increase public awareness.”
Glyn lives in Hertfordshire with his wife Katy and their two teenage children and is currently planning a trek up Mount Kilimanjaro to raise funds for Sarcoma UK.
Sarah is former Head of Events & Visits at 10 Downing Street, having worked for both the current and previous Prime Minister. Sarah was a colleague of Chris Martin at 10 Downing Street and she led No 10’s working group during our charity of the year partnership in 2016.
Sarah is now a director at the newly formed Commonwealth Summit Unit, part of the Cabinet Office. In April 2018, the UK will host the Commonwealth Summit – one of the biggest national events since the Olympic Games - and the Commonwealth Heads of Government Meeting.
Sarah brings expertise in communications to Sarcoma UK’s Board of Trustees.
Andy has 30 years’ experience working in the Finance environment. The first 15 years were as an auditor, and since 2000 as the Group Financial Controller of Huntswood, a highly profitable company that provides specialist resourcing and consultancy services.
In November 2014, Andy’s son Tom was diagnosed with Ewing’s sarcoma and Tom took the decision to raise as much money as possible for Sarcoma UK. Sadly, Tom passed away in September 2015, and Tom’s Fund now stands at an amazing £20,000.
Andy says “I believe that my accountancy skills together with my involvement in fundraising at Maidenhead Rugby Club, and my experience of witnessing the effects of sarcoma on my son, will allow me to make a valuable contribution to Sarcoma UK”.
Rob is Professor of Orthopaedic Oncology at the Royal Orthopaedic Hospital, Birmingham. He is one of the leading authorities in the world on sarcoma and has helped pioneer the use of extendable prostheses and the use of new surgical techniques such as irradiation and re-implantation of bone to treat sarcoma. Rob has chaired the National Cancer Research Institute’s Sarcoma Clinical Studies Group and the National Cancer Intelligence Network’s Sarcoma Group as well as being a founder of the British Sarcoma Group (association for professionals in the sarcoma field).
Rob is particularly interested in how patients with visible lumps and bumps that could be sarcoma, are identified and treated earlier. He is renowned in the sarcoma world for developing the innovative ‘golf ball’ idea as a way of encouraging earlier diagnosis of sarcomas. Semi-retired (but still working as hard as ever), Rob brings his enthusiasm, ideas and considerable experience to Sarcoma UK as a trustee, to help us in our work to improve the experiences of sarcoma patients.
Ian is the owner at SILO Consulting Ltd, based in York. Ian has first-hand experience of sarcoma, having undergone surgery in 2010 to remove a tumour. Ian says: “Dealing with pre- and post-medical intervention and balancing this with a young family of three boys and a busy work life gives me a unique patient perspective.” Ian’s motivation to become a trustee was driven by the first-hand knowledge that early diagnosis has a genuine impact on survival rates and his desire to help Sarcoma UK increase awareness and knowledge.
Ian has been known to don his lycra shorts and take part in cycling challenges to raise money for Sarcoma UK.
Ian trained at Cambridge University, where he read Natural Sciences, and subsequently studied medicine at King’s College Hospital Medical School, London. His decision to specialise in oncology was made while working as a junior doctor at the Royal Marsden Hospital.
After research for his MD at the Institute of Cancer Research and completion of specialist training, he was appointed Senior Lecturer in 1989 and worked for many years on the development of new anticancer drugs, such as temozolomide, abiraterone acetate, everolimus, angiogenesis and HSP90 inhibitors.
Ian has also been treating patients with sarcoma for 25 years and has conducted many clinical trials in this area, most notably as part of the international team which performed the initial study of imatinib for patients with gastrointestinal stromal tumour (GIST). This drug has transformed the lives of thousands of people with GIST and helped turn it into a chronic manageable disease for many.
Ian was a founder member of the British Sarcoma Group and President until 2015 and was for many years Head of the Sarcoma Unit at the Royal Marsden.
Louisa is a nurse with extensive experience in the delivery of oncological and specialist palliative care services. She is currently Ward Manager at a Sue Ryder hospice in Henley-on-Thames.
Louisa’s husband was diagnosed with high grade osteosarcoma in March 2016. Louisa and her husband have accessed support from Sarcoma UK, and their two teenage children have undertaken fundraising activities for the charity.
Louisa brings both professional and personal experience to Sarcoma UK’s Board of Trustees. She is passionate about the integration of palliative care and oncology and how both services can work together to benefit sarcoma patients and their families.
Sharon is a former Executive Director and Chief Operating Officer at Edelman, the world’s largest PR agency. Having worked in communications for the last 18 years, Sharon is passionate about getting people to think and act differently and she just loves a new challenge
Sharon says, "I know how important early diagnosis is and I’m very excited about the opportunity to work with the rest of the team as a trustee to raise the profile of Sarcoma UK."
Anjula qualified in law and worked as a legal officer in the voluntary sector before taking up her current role as a civil court judge.
Anjula is the wife of Sarcoma UK trustee Dave Thompson who sadly passed away in 2016. Anjula and their two daughters, with Dave’s extended family and friends, have raised over £65,000 for Sarcoma UK.
Since Dave passed away, Anjula has played an ambassadorial role for the charity, representing Sarcoma UK at a House of Lords reception for Cancer 52 and at high profile fundraising events. Most recently, Anjula has worked with the staff team to provide written and verbal evidence to NICE at the Technology Appraisal for the new immunotherapy treatment, olaratumab.
Jo is a Sarcoma Advanced Nurse Practitioner, the lead for sarcoma nursing services, and a key member of the South Wales Sarcoma Multi-Disciplinary Team.
She was the first sarcoma specialist nurse to be appointed in South Wales in 2012, providing a unique and expert resource for patients, their families, and professional colleagues. Jo has successfully introduced a new rapid access, one-stop diagnostic clinic approach to sarcoma service provision in South Wales.
Jo receives direct referrals of patients with suspected sarcoma from colleagues in both primary and secondary care and is responsible for managing their treatment and care. She also runs regular education programmes for GPs. Jo brings excellent experience of sarcoma services in a devolved nation to Sarcoma UK’s Board of Trustees.
Jeff is a consultant medical oncologist at the Beatson West of Scotland Cancer Centre; and former National Lead Clinician for the Scottish Sarcoma Network. The Network was formally launched in November 2004 and its aim is to optimise the management of patients with sarcoma in Scotland.
Jeff says “In my role, I recognise some of the limitations of patient care that the NHS delivers. Working with third sector organisations is a very good way to enhance the patient experience with the NHS and I feel that Sarcoma UK are very adept at such work. Moreover, such partnership work provides a useful professional resource and voice for a diverse group of healthcare professionals.”
Sarcoma UK is registered as a charity in Scotland and provides support and information to a growing number of people affected by sarcoma in Scotland.
Sam is a barrister working principally in the area of child protection and was called to the bar in 1995. As well as her professional life at the bar, she is kept very busy with her family including her two young children.
In 2009, Sam lost her best friend Adrian to sarcoma, age 42. Sam says “Adrian is the inspiration for me to become involved with, and assist Sarcoma UK in whatever way I can. Adrian approached his illness with courage, determination and a very positive spirit and left behind a young daughter and lovely wife.”
As well as being a trustee, Sam can also be persuaded on occasions to get on her bike for Sarcoma UK. In 2015 she was part of Team Sarcoma in the Prudential Ride 100,.