Sharon is a former Executive Director and Chief Operating Officer at Edelman, the world’s largest PR agency. Having worked in communications for the last 18 years, Sharon is passionate about getting people to think and act differently and she just loves a new challenge

Sharon says, "I know how important early diagnosis is and I’m very excited about the opportunity to work with the rest of the team as a trustee to raise the profile of Sarcoma UK."

Sarah is former Head of Events & Visits at 10 Downing Street, having worked for both the current and previous Prime Minister. Sarah was a colleague of Chris Martin at 10 Downing Street and she led No 10’s working group during our charity of the year partnership in 2016.

Sarah is now a director at the newly formed Commonwealth Summit Unit, part of the Cabinet Office. In April 2018, the UK will host the Commonwealth Summit – one of the biggest national events since the Olympic Games - and the Commonwealth Heads of Government Meeting.

Sarah brings expertise in communications to Sarcoma UK’s Board of Trustees.

Special Interest in Finance

Andy has 30 years’ experience working in the Finance environment. The first 15 years were as an auditor, and since 2000 as the Group Financial Controller of Huntswood, a highly profitable company that provides specialist resourcing and consultancy services. 

In November 2014, Andy’s son Tom was diagnosed with Ewing’s sarcoma and Tom took the decision to raise as much money as possible for Sarcoma UK. Sadly, Tom passed away in September 2015, and Tom’s Fund now stands at an amazing £20,000.

Andy says “I believe that my accountancy skills together with my involvement in fundraising at Maidenhead Rugby Club, and my experience of witnessing the effects of sarcoma on my son, will allow me to make a valuable contribution to Sarcoma UK”.

Isla Robinson is a freelance Marketing Consultant (Director level) with over 15 years’ experience of local and global marketing, including as a lead member of the team for Campari UK. Isla brings her professional expertise to the Board alongside first-hand experience of Ewings sarcoma which she was diagnosed in 2011. This was when Isla first discovered Sarcoma UK, and has since found the charity to be a ‘key source’ of reliable information.

 ‘The experience made me acutely aware of the importance of raising awareness of the disease, improving early diagnosis and supporting patients. All areas that Sarcoma UK are trying to address’

Michael is a Consultant Orthopaedic Surgeon at the Royal Orthopaedic Hospital specialising in orthopaedic oncology and primary and revision lower limb arthroplasty. He took up his role in 2015 having previously worked under the guidance and supervision of Professor Robert Grimer.

 Michael undertook undergraduate medical training at the University of Bristol qualifying in 2001. He continued his training in Oxford and the South East before returning to Bristol to complete his higher surgical training. His specialist interests are in orthopaedic oncology and lower limb arthroplasty, with a particular interest in the management of infected joint replacements.

Ian trained at Cambridge University, where he read Natural Sciences, and subsequently studied medicine at King’s College Hospital Medical School, London.  His decision to specialise in oncology was made while working as a junior doctor at the Royal Marsden Hospital.

After research for his MD at the Institute of Cancer Research and completion of specialist training, he was appointed Senior Lecturer in 1989 and worked for many years on the development of new anticancer drugs, such as temozolomide, abiraterone acetate, everolimus, angiogenesis and HSP90 inhibitors.

Ian has more than 25 years’ experience of treating patients with sarcoma and has conducted many clinical trials in this area, most notably as part of the international team which performed the initial study of imatinib for patients with gastrointestinal stromal tumour (GIST).  This drug has transformed the lives of thousands of people with GIST and helped turn it into a chronic manageable disease for many.  

Ian was a founder member of the British Sarcoma Group and President until 2015 and was for many years Head of the Sarcoma Unit at the Royal Marsden.  He retired in 2016. 

Louisa is a nurse with extensive experience in the delivery of oncological and specialist palliative care services. She is currently Ward Manager at a Sue Ryder hospice in Henley-on-Thames.

Louisa’s husband was diagnosed with high grade osteosarcoma in March 2016. Louisa and her husband have accessed support from Sarcoma UK, and their two teenage children have undertaken fundraising activities for the charity.

Louisa brings both professional and personal experience to Sarcoma UK’s Board of Trustees. She is passionate about the integration of palliative care and oncology and how both services can work together to benefit sarcoma patients and their families.

Anjula qualified in law and worked as a legal officer in the voluntary sector before taking up her current role as a civil court judge.

Anjula is the wife of Sarcoma UK trustee Dave Thompson who sadly passed away in 2016. Anjula and their two daughters, with Dave’s extended family and friends, have raised over £65,000 for Sarcoma UK.

Since Dave passed away, Anjula has played an ambassadorial role for the charity, representing Sarcoma UK at a House of Lords reception for Cancer 52 and at high profile fundraising events. Most recently, Anjula has worked with the staff team to provide written and verbal evidence to NICE at the Technology Appraisal for the new immunotherapy treatment, olaratumab.

Jo is a Sarcoma Advanced Nurse Practitioner, the lead for sarcoma nursing services, and a key member of the South Wales Sarcoma Multi-Disciplinary Team.

She was the first sarcoma specialist nurse to be appointed in South Wales in 2012, providing a unique and expert resource for patients, their families, and professional colleagues. Jo has successfully introduced a new rapid access, one-stop diagnostic clinic approach to sarcoma service provision in South Wales.

Jo receives direct referrals of patients with suspected sarcoma from colleagues in both primary and secondary care and is responsible for managing their treatment and care. She also runs regular education programmes for GPs. Jo brings excellent experience of sarcoma services in a devolved nation to Sarcoma UK’s Board of Trustees.

Sam is a barrister working principally in the area of child protection and was called to the bar in 1995. As well as her professional life at the bar, she is kept very busy with her family including her two young children.

In 2009, Sam lost her best friend Adrian to sarcoma, age 42. Sam says “Adrian is the inspiration for me to become involved with, and assist Sarcoma UK in whatever way I can. Adrian approached his illness with courage, determination and a very positive spirit and left behind a young daughter and lovely wife.”

As well as being a trustee, Sam can also be persuaded on occasions to get on her bike for Sarcoma UK. In 2015 she was part of Team Sarcoma in the Prudential Ride 100.

Russ is currently a Partner at Hall & Partners, one of the UK's leading Brand Strategy consultancies. His role involves carrying out primary research with consumers, patients and healthcare professionals, as well as senior business stakeholders and experts, using insight developed from this research to inform business and brand strategy decision making.  Russ has spent the last 10 years in similar roles across a number of agencies, and prior to working in industry, he completed a PhD in Applied Linguistics - understanding the nuance of what people mean when they they give opinions. 

Russ has a very personal experience of sarcoma, having had an osteosarcoma removed from his leg when he was in his 20s.  He was diagnosed after breaking his leg, and treated with a partial excision of my left fibula.  Russ has been fortunate to have had no further treatment and no on-going side effects over the last 15 years. 

Outside of work Russ lives in East Sussex with his wife and two young daughters and when time permits is a keen runner.

Future Sarcoma UK Trustee

You get experience that it might take 30 years to get in a regular job.

Ever thought about becoming a trustee?

Being a Trustee is hugely rewarding – there are a lot of benefits for both you and us.

There has never been a more exciting time to get involved with Sarcoma UK’s work.

We are looking for energetic and passionate applicants to our Board who are able to bring a range of different backgrounds, competencies and expertise to ensure we have a good balance to make sure we work to the public benefit. Essentially, we’d like to benefit from what makes you unique.

As a trustee, you can help us in several ways:

  • provide support with strategic oversight
  • relationship building with potential funders, partners, staff and the wider healthcare charity sector
  • supporting the Chief Executive and Management Team, and
  • ensure strong corporate governance in line with both charity and company law.

There are serious responsibilities too; our trustees accept ultimate legal responsibility for directing the work of the charity. This includes making sure it is financially solvent, well-run and is delivering its stated charitable outcomes for the benefit of our patients, their families and the wider sarcoma community.

We don’t expect all our trustees to have all, or indeed any, of the following expertise. However, if you do have any of the following specific skills, please tell us:

  • Financial, HR or governance skills
  • Political and/or campaigning engagement or experience
  • Fundraising experience
  • Media / communication / public relations/social media skills
  • Knowledge of the workings of the NHS and patient services/care (this could be as a patient, family member or healthcare professional)
  • Experience of working with patients, medical professionals and/or volunteers

You don’t need to have experience of charities or governance – knowledge you have gained from other sectors or roles may be just as useful, coupled with energy, enthusiasm and a desire to make a difference. We will support you in your time as a Trustee.

Interested? We'd love to hear from you. Contact Katie Haywood via If you would like to apply for the position of Trustee please send your CV, along with a brief covering letter to: explaining your interest in Sarcoma UK and how you believe you could contribute as a trustee.

Closing date: Friday 11 February 2022