Finding out you have sarcoma can be tough. There is support out there to help you cope, whether you’re an older child, teenager, or young adult.
Your specialist clinical team and your GP are there for you, but there is extra support available if you need it. Your parents, friends, and family might also find this information useful.
Support from Sarcoma UK
We are here to help you. Our Support Line is available to anyone affected by sarcoma. It’s a free and confidential service run by our friendly team of sarcoma nurses and healthcare professionals. Find out more about our Support Line.
We also have health information to help you understand about your sarcoma, and information about general support for sarcoma.
Understanding your type of sarcoma
Knowing more about your specific type of sarcoma can help you to have better conversations with your doctors. Understanding your cancer may also help to reduce worry and anxiety.
We have information to help you understand about the different subtypes of sarcoma.
Support for parents and carers
If you have a younger child with sarcoma, we have resources to help you explain their diagnosis and treatment in a way they can understand. We also have advice about looking after yourself as you support your child.
It might also be helpful for you to connect with other parents and carers who have been through the same thing. You can meet people by joining the parent and carer support group.
Mental health support
NHS services
You can ask your GP to refer you to mental health and wellbeing services. The NHS has a number of children’s and young people’s mental health services, such as CAMHS.
Mind
The charity Mind have a useful directory of mental health support contacts for 11–18-year-olds. Visit their website to find out more.
Local support
There may be support available in your local area. Ask your doctor about local charities and support groups that might be able to help you with sarcoma.
Macmillan has a postcode search for local cancer support.
Other support
There are lots of organisations and charities who specifically help young people with their cancer diagnosis.
Calm Harm
An app recommended for people who are 13 years old or older that helps manage urges to self-harm.
Clear Fear
An app for those aged 11-19. The app helps children and young people manage symptoms of anxiety using the Cognitive Behavioural (CBT) framework.
Young Lives vs Cancer
Young Lives Vs Cancer is a charity that provides information for children and young people on coping with cancer and information for parents on grief and bereavement.
If you are under 25, you can contact their Social Care team by phone, email or web chat. They also have Facebook support groups for people aged 16–25, parents and carers, dads, and a parents’ and carers’ bereavement group which you can join.
Fruit Fly Collective
The Fruit Fly Collective is a charity that creates and signposts to information resources to help children cope when a parent has cancer or to help families talk and learn about cancer. They also have support guides for parents living with cancer.
Teenage Cancer Trust
The Teenage Cancer Trust is a charity that provides specialist nursing care and support for young people aged 13 to 24. They provide information for patients and loved ones.
Shine Cancer Support
Shine Cancer Support is a charity that supports adults in their 20s, 30s and 40s who have experienced a cancer diagnosis. They provide information resources and run talks, groups, programmes, and workshops for patients and their loved ones. You can also join one of their Facebook support groups.
Last reviewed May 2025
Next review due May 2028
