It's summer and Sarcoma UK is back with inspirational stories from the sarcoma community. Meet Tracey Pahel, a determined grandmother setting her sights on joining a unique racing team, despite have elected to have her leg amputated; Andrew Sutton shares his tips on getting through chemotherapy, and news on our commitment to funding two PhD students.
This report gives a frank snapshot of what the current sarcoma landscape looks like in the UK, and reveals how sarcoma and a general lack of awareness around the cancer can have a devastating impact on both patients, their families and friends, from diagnosis through to treatment.
This guide is for allied health professionals who treat sarcoma patients but whose majority caseload is not sarcoma. It’s particularly relevant for those who work in the community with sarcoma patients who have been discharged from a specialist centre.
Sarcoma UK's GP sarcoma diagnostic toolkit contains simple yet effective tools outlining the signs and symptoms of sarcoma and guidance on how to refer patients to sarcoma specialist health services for diagnosis and treatment.
“Seeking answers through research” is a core priority of Sarcoma UK's 2014-2020 Strategy, Transforming the landscape for sarcoma. We want to maximise the impact of our own research programme, and to play a significant role in influencing the national sarcoma research agenda.
Delays Cost Lives highlights how poor awareness of symptoms among the public and healthcare professionals, made worse by a complex diagnostic pathway, means that sarcomas often go misdiagnosed or are simply ignored and dismissed.
Following the success of National Sarcoma Survey in 2015 and the invaluable data it collected, Sarcoma UK decided to re-run the survey in 2020 with a broadened purpose: to collect data on sarcoma patient experience in order to build an evidence-base for influencing. This was also expanded beyond adult sarcoma patients to include children with sarcoma and family and carers of those with sarcoma.
Once again, the results from the survey have created a robust dataset. The data has allowed us to build a clearer picture of patients’ experience of the diagnosis, treatment and emotional impact of sarcoma. It has both drawn attention to and given evidence for areas where further policy and campaigning work can be undertaken.
Demonstrating the value of Sarcoma UK’s work to supporters, clinicians, researchers or anyone affected by sarcoma is invaluable. This impact report for the 2018-19 year showcases the difference we’re making at Sarcoma UK through the research we fund, our policy work, our information respurces and the support we offer.