Patient Guides

Image of information about your hospital appointment and COVID-19
Monday, April 20, 2020

Due to Covid-19, most follow up appointments have been moved to telephone calls rather than face to face. This factsheet will help you to prepare for your appointments to get the most out of them.

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Image of the phyllodes of the breast factsheet
Tuesday, January 28, 2020

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Image of the dermatofibrosarcoma protuberans factsheet
Tuesday, January 28, 2020

Dermatofibrosarcoma protuberans (DFSP) is a rare type of cancer found in the dermis, the middle layer of the skin. 

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Understanding desmoid-type fibromatosis booklet cover
Monday, November 18, 2019

This booklet is aimed at anyone who has been diagnosed with desmoid-type fibromatosis. 

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Understanding Rehabilitation and Life After Treatment booklet cover
Monday, November 18, 2019

Whether you’re about to start sarcoma treatment, having treatment or recovering following treatment, this booklet can provide you with information about recovery and support.

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Understanding retroperitoneal_sarcoma_booklet_cover
Monday, November 18, 2019

This booklet is aimed at anyone who has been diagnosed with a retroperitoneal sarcoma.

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Understanding Bone Sarcoma booklet cover
Monday, November 18, 2019

This booklet is aimed at anyone who has been diagnosed with a bone sarcoma. It explains what bone sarcoma is, how it is diagnosed and the treatment options available.

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Sarcoma UK Understanding GIST booklet cover
Monday, November 18, 2019

This booklet is for anyone who has been diagnosed with a gastrointestinal stromal tumour (GIST).

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Sarcoma UK Understanding Gynaecological Sarcoma booklet cover
Monday, November 18, 2019

This booklet is aimed at any woman who has been diagnosed with a gynaecological sarcoma.

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Monday, September 9, 2019

Some treatments for sarcoma can leave you at risk of developing lymphoedema, but what is it? This updated factsheet talks about the sings, symptoms and how it can be prevented.

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Monday, September 9, 2019

This booklet is aimed at anyone who has a diagnosis of sarcoma in the head or neck area, explaining what it is, how it is diagnosed and what treatment options are available.

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Monday, September 9, 2019

This updated booklet is aimed at anyone who has recently been diagnosed with sarcoma cancer. It explains what sarcoma is, how it is diagnosed and the treatment options available to you. 

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Friday, August 16, 2019

This leaflet explains what sarcoma is, and why a referral to a specialist sarcoma team is important to get the right diagnosis. 

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Image of first page of Sarcoma UK Genomic testing for sarcoma factsheet
Monday, January 21, 2019

This factsheet explains genomic testing, who is eligible for consideration and how it may benefit patients.

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Image of Sarcoma UK Lymphodema factsheet
Monday, January 21, 2019

Find out more about lymphoedema in this Sarcoma UK factsheet which is also available to order as a handy credit card sized fold out.

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Sarcoma UK Giant Cell Tumours of the Bone Factsheet
Tuesday, September 25, 2018

Giant cell tumours (GCT) are benign (noncancerous) tumours that develop in the bone.

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Sarcoma UK Factsheet on Proton Beam Therapy
Thursday, June 15, 2017

This factsheet explains more about PBT, including who is eligible for the treatment and why it might be beneficial for them. 

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Friday, December 16, 2016

This factsheet explains how to find information you can trust and how to tell the difference between reliable information and misinformation.

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Friday, December 16, 2016

As a member of the sarcoma community you may be asked to take part in market research. Here is some guidance to help you make an informed choice about taking part.

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Connect

Cover of Connect Summer 2020
Monday, June 8, 2020

It's summer and Sarcoma UK is back with inspirational stories from the sarcoma community. Meet Tracey Pahel, a determined grandmother setting her sights on joining a unique racing team, despite have elected to have her leg amputated; Andrew Sutton shares his tips on getting through chemotherapy, and news on our commitment to funding two PhD students.

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Connect Winter 2019
Thursday, December 5, 2019

The winter 2019 edition of Sarcoma UK's newsletter.

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Wednesday, July 24, 2019

Sarcoma UK's newsletter returns with a new look for summer!

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Cover of Connect Spring 2019
Monday, January 28, 2019

Sarcoma UK's print publication with stories and news from the sarcoma community. 

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Cover of Connect Winter 2017 edition
Friday, January 5, 2018

Publication Date: Monday, Jan 5, 2018

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Sarcoma UK front cover Connect Summer 2017
Monday, June 5, 2017
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Monday, February 13, 2017

Read in Issuu

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cover page
Thursday, October 13, 2016
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Frony Cover of Sarcoma UK's Connect magazine Summer 2016 edition
Monday, May 23, 2016

Connect, Summer 2016
Read in ISSUU. 

 

 

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Connect winter 2015 cover
Friday, December 11, 2015

Connect, Winter 2015

Read in ISSUU. 

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Sarcoma UK Connect Summer 2015 Cover
Monday, August 17, 2015

Connect, Summer 2015

Read in ISSUU

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Friday, May 1, 2015

Connect, Spring 2015

Read in ISSUU

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Sarcoma UK Connect front cover autumn 2014
Wednesday, October 1, 2014

Connect, Autumn 2014

Read in ISSUU

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Sarcoma UK Connect front cover 2014
Thursday, May 1, 2014

Connect, Spring 2014

Read in ISSUU

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Sarcoma UK Connect front cover winter 2013
Sunday, December 1, 2013

Connect, Winter 2013

Read in ISSUU

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Sarcoma UK Connect front cover spring 2013
Wednesday, May 1, 2013

Connect Spring/Summer 2013

Read in ISSUU

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Sarcoma UK Connect front cover winter 2012
Saturday, December 1, 2012

Connect, Winter 2012

Read ISSUU

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Sarcoma UK Connect front cover summer 2012
Sunday, July 1, 2012

Connect, Summer 2012

Read in ISSUU

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Sarcoma UK Connect front cover spring 2012
Sunday, April 1, 2012

Connect, Spring 2012

Read in ISSUU

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Sarcoma UK Connect front cover winter 2011
Thursday, December 1, 2011

Connect, Winter 2011/2012

Read in ISSUU

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Sarcoma UK Connect front cover summer 2011
Wednesday, June 1, 2011

Connect, Summer 2011

Read in ISSUU

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Fundraising resources

Poster for Sarcoma Awareness Week 2020
Thursday, June 25, 2020

Spread the word about Sarcoma Awareness Week 2020.

Here are three colourful designs in one file.

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sarcoma_uk_key_facts
Wednesday, June 3, 2020

This factsheet outlines the key statistics and facts about sarcoma in the UK, including incidence, survival and awareness. It should be useful for anyone promoting awareness. 

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GBP Zoom background 4
Tuesday, May 26, 2020

You can view and download our Great British Picnic Zoom backgrounds on Dropbox here.

GBP Facebook image
Tuesday, May 26, 2020

View and download our Great British Picnic images for social media on Dropbox here.

GBP Fundraising tips
Friday, May 22, 2020

Top tips to help you organise your own Great British Picnic.

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bunting
Friday, May 22, 2020

Make your own bunting or paper chains to decorate your picnic

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a4_print_poster_invites_-_multiple_options
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Picnic recipe cards
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Picnic sample quiz questions
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GBP Scavenger Hunt
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Sarcoma UK Photo Consent Form
Thursday, May 14, 2020

Please use when photographing children and vulnerable adults. These must be signed by the appropriate person, usually a parent, guardian or carer.

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Friday, October 25, 2019

Sarcoma Uk's equality and diversity policy. 

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Sarcoma UK Christmas Star. It reads I hope you know how loved you are each day and especially at Christmas
Monday, October 14, 2019

This Christmas we're decorating our first Christmas Carol Concert with the stars you have dedicated to your loved ones. 

Tuesday, July 9, 2019

Download and print our Sarcoma UK poster for your event. 

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Tuesday, July 9, 2019

Edit and print your own Sarcoma UK poster for your event. 

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Friday, July 5, 2019

Are you fundraising for Sarcoma UK? Use this Word document to tell your local newspaper/radio or TV station about your fundraising idea or story for maximum impact. 

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rebrand_fundraising_event_tips
Thursday, February 28, 2019

Our top tips to help you organise your fundraising event.

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rebrand_fundraising_challenge_tips
Thursday, February 28, 2019

Our top tips to help you get the most out of your fundraising for your challenge activity.

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Sarcoma UK Matt Pullen Running Coach
Friday, October 26, 2018

Matt Pullen, running coach, shares his top tips as you approach the final six weeks of your marathon training.

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Sarcoma UK Matt Pullen Running Coach
Friday, October 26, 2018

Matt Pullen, running coach, shares his top tips for the final few weeks before your marathon and on the big day itself.

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Sarcoma UK Matt Pullen Running Coach
Friday, October 26, 2018

Matt Pullen, running coach, gives his top tips for starting your marathon training.

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Sarcoma UK Matt Pullen Running Coach
Friday, October 26, 2018

Matt Pullen, running coach, shares his top tips for mid-way through your marathon training.

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cheering_tips_vlm18
Thursday, March 29, 2018

Tips and ideas to make supporting family and friends running the Virgin Money London Marathon easier.

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Friday, April 7, 2017
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Monday, January 30, 2017

This promise outlines the commitment made to donors and the public by fundraising organisations which register with the Fundraising Regulator.

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sponsorship_form_landscape
Friday, March 11, 2016

Download our sponsorship form and start fundraising today. Remember to ask your donors to fill in their full address & postcode so we can claim an extra 25% in Gift Aid

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Friday, March 11, 2016

UK taxpayers can add an additional 25% to their donations at no extra cost. Complete and return this form.

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Make a regular donation to Sarcoma UK.

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Health Professionals, Reports, policies and strategy documents

Sarcoma: The Loneliest Cancer Cover Image
Tuesday, November 26, 2019

This report gives a frank snapshot of what the current sarcoma landscape looks like in the UK, and reveals how sarcoma and a general lack of awareness around the cancer can have a devastating impact on both patients, their families and friends, from diagnosis through to treatment.

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Health Professionals

Cover of Guide to Sarcoma for Allied Health Professional
Tuesday, October 6, 2020

This guide is for allied health professionals who treat sarcoma patients but whose majority caseload is not sarcoma. It’s particularly relevant for those who work in the community with sarcoma patients who have been discharged from a specialist centre.

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Thursday, October 24, 2019

Sarcoma UK's GP sarcoma diagnostic toolkit contains simple yet effective tools outlining the signs and symptoms of soft tissue sarcoma and guidance on how to refer patients to sarcoma specialist he

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Thursday, October 24, 2019

Sarcoma UK's GP sarcoma diagnostic toolkit contains simple yet effective tools outlining the signs and symptoms of bone sarcoma and guidance on h

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Thursday, October 24, 2019

Sarcoma UK's GP sarcoma diagnostic toolkit contains simple yet effective tools outlining the signs and symptoms of soft tissue sarcoma  and guida

Download (37.08 KB)
Thursday, October 24, 2019

Sarcoma UK's GP sarcoma diagnostic toolkit contains simple yet effective tools outlining the signs and symptoms of sarcoma and guidance on how to refer patients to sarcoma specialist health services for diagnosis and treatment.

Download (39.23 KB)

Research, Reports, policies and strategy documents

Friday, July 31, 2020

In April 2020 we asked people what they knew about sarcoma. 

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Research

Thursday, December 17, 2015

“Seeking answers through research” is a core priority of Sarcoma UK's 2014-2020 Strategy, Transforming the landscape for sarcoma. We want to maximise the impact of our own research programme, and to play a significant role in influencing the national sarcoma research agenda.

Diagram of Sarcoma UK research cycle
Wednesday, July 22, 2015

Diagram illustrating the cycle of scientific and medical research, a constant generation of ideas and hypothesis to test and gather knowledge and evidence.

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sarcoma_uk_principles_of_peer_review
Saturday, January 17, 2015

Sarcoma UK's Principles of Peer review.

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Reports, policies and strategy documents

Sarcoma UK Annual Report and Accounts 2019-20
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Thursday, November 5, 2020

A testament to what we can achieve together.

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Cover of Delays Cost Lives: A call to policy makers to improve early diagnosis of sarcoma
Tuesday, September 8, 2020

Delays Cost Lives highlights how poor awareness of symptoms among the public and healthcare professionals, made worse by a complex diagnostic pathway, means that sarcomas often go misdiagnosed or are simply ignored and dismissed.

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Impact of Sarcoma cover page
Tuesday, July 21, 2020

Following the success of National Sarcoma Survey in 2015 and the invaluable data it collected, Sarcoma UK decided to re-run the survey in 2020 with a broadened purpose: to collect data on sarcoma patient experience in order to build an evidence-base for influencing. This was also expanded beyond adult sarcoma patients to include children with sarcoma and family and carers of those with sarcoma.

Once again, the results from the survey have created a robust dataset. The data has allowed us to build a clearer picture of patients’ experience of the diagnosis, treatment and emotional impact of sarcoma. It has both drawn attention to and given evidence for areas where further policy and campaigning work can be undertaken.

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Early Diagnosis Report Cover
Monday, June 29, 2020

Early diagnosis is one of the key drivers for improving survival, and through discussions with supporters and clinicians, academic research and through the results of the National Sarcoma Survey 20

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Support Group Leader Guidelines Cover
Friday, December 20, 2019

A set of guidelines for support group leaders.

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Friday, November 8, 2019

This policy outlines the relationship between Sarcoma UK staff and volunteers, and gives guidance on how it appoints and manages volunteers and how they fit into the charity's work.

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Friday, November 8, 2019

This handbook is aimed at volunteers to help them get the most out of their time with Sarcoma UK

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Wednesday, October 30, 2019

Sarcoma UK's latest Annual Report and Accounts for 2018-19 is where you can read in detail about our achievements over the past year, how we've used your donations, and our plans for the future. 

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Friday, October 25, 2019

Sarcoma UK's safeguarding policy for adults. 

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Thursday, October 24, 2019

Sarcoma UK's policy for equality and diversity.

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Title cover of Sarcoma UK's Impact report 2018-2019
Monday, October 21, 2019

Demonstrating the value of Sarcoma UK’s work to supporters, clinicians, researchers or anyone affected by sarcoma is invaluable. This impact report for the 2018-19 year showcases the difference we’re making at Sarcoma UK through the research we fund, our policy work, our information respurces and the support we offer. 

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Monday, January 14, 2019

Being able to measure and demonstrate the value of Sarcoma UK’s work to the sarcoma community, whether that’s to supporters, donors, clinicians, researchers or anyone affected by sarcoma is invalua

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How we spend your money
Wednesday, October 17, 2018

Our latest Annual Report and Accounts is where you can read in detail about our achievements over the past year, how we've used your donations, and our plans for the future. 

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Cover of Our Year In Numbers: Sarcoma UK Impact Report
Thursday, December 14, 2017

Sarcoma UK is the only cancer charity in the UK focusing on all types of sarcoma.

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Wednesday, November 15, 2017
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Tuesday, October 31, 2017

Our latest Annual Report is where you can read about our achievements over the 2016/17 year, how we used your donations, and our plans for the future.

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Annual report 2015/16 Front Cover
Wednesday, October 19, 2016

Our latest Annual Report is where you can read about our achievements for the year, how we used your donations, and our plans for the future.

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Sunday, December 6, 2015
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Sarcoma UK Annual Review 2013-14 cover
Monday, March 31, 2014
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sarcoma_uk_gynae_report_front_cover
Wednesday, January 1, 2014
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Wednesday, February 1, 2012
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Sunday, January 1, 2012
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