Winner: Liverpool, Merseyside and North Wales Sarcoma Support Group
Not to be confused with the North West group who are also nominated, this group has evolved from a small group holding bi-monthly meetings, to now messaging one another daily with encouragement, news or to chat. Leaders Rob and Emma play a very important role in encouraging this activity. In addition, the group hold a summer event, a Christmas meal and an awareness day during Sarcoma Awareness Month. The group has been alluded to as a ‘shining light during very hard times’ and a ‘lifeline’.
Tony Grover, East Anglia Sarcoma Support Group
Following his sarcoma diagnosis in April 2011, Tony has facilitated the East Anglia Sarcoma Support Group since February 2012, offering both face to face and virtual catch ups, making it accessible for all. He is always keen to help the support groups progress and recently started a support group leaders email forum, enabling the leaders to keep in touch and share ideas. Tony also helped to make a flyer template for other support groups to utilise. Members of the group describe Tony as ‘always being welcoming and helpful’.
Simon Henson and Club HQ
Club HQ, led by Simon Henson has welcomed new members and provided one-to-one support, even travelling to meet some people about to undergo hindquarter amputation (HQA). Simon has helped to develop a website for Club HQ and produced a survey for all members to gather feedback and ideas for the group moving forwards. Simon continually works with Sarcoma UK to improve the experiences of those affected by sarcoma and HQA.
North West Sarcoma Support Group
The North West Sarcoma Support Group meets every month, either face-to-face or virtually, with the leaders and members providing meaningful advice and sympathy. Members talk about the reassurance offered in the group and the importance of the friendships that develop there.