Getting support with a clinical trial

This information is all about the support you can get when taking part in a clinical trial, including practical and financial information. 

If you feel like you need support with a clinical trial for sarcoma, contact our friendly Support Line.

Practical and financial support

It’s a good idea to plan ahead, especially if your trial involves regular hospital visits, time away from home, or side effects that affect your energy levels.

• Some hospitals may offer accommodation for you and your carer. Ask your research team if this is available and if you have to pay for it.
• There may also be support available if you are usually a carer for others.
• Many trials cover travel expenses or accommodation costs. You can find out if this includes your partner or carer’s travel too.
• If you need time off work or are facing money worries, your clinical nurse specialist can guide you on benefits and financial help.

If you have newly diagnosed primary bone cancer in the UK, you may be eligible for a grant from the Bone Cancer Research Trust. Find out more on their website.

We have more information about getting financial and practical support.

Emotional and mental wellbeing

Dealing with a sarcoma diagnosis and deciding whether to take part in a trial can be really challenging. It’s normal to feel overwhelmed, anxious, or unsure.

Many people find it helpful to talk to:

• the Sarcoma UK Support Line
• a clinical nurse specialist, research nurse, or GP – they can refer you to the right support services like counselling
• support staff from organisations like Macmillan, a Maggie’s Centre, or other cancer support services
• other people affected by sarcoma through support groups, online forums, or social media communities.

Although some people do find comfort in speaking with friends or family, others may feel their loved ones don’t fully understand what they’re going through, and that’s completely valid. You may find more reassurance by connecting with people or professionals who understand the experience of sarcoma firsthand.