If you or a loved one has a terminal sarcoma diagnosis, it’s completely normal to feel overwhelmed and uncertain about what comes next.
There is no right or wrong way to feel or react to a diagnosis.
You may feel angry, sad or anxious about the future. You may also have concerns about how the news will affect your loved ones. You may find comfort in talking about your concerns with family members or friends.
You may find it helpful to talk to your sarcoma clinical nurse specialist or doctor about your diagnosis. They will be able to answer any questions you may have. They may also be able to put you in touch with a counsellor for additional support, so you can have a safe and confidential place to talk about your concerns.
You can also talk to us. Our support line is here for everyone affected by sarcoma. You can call us for both emotional and practical support.
Talking to others
Reaching out to others can make a big difference in coping with your diagnosis. Talking to family members, friends, or joining support groups can provide a safe space to share your emotions and find understanding.
Talking to others about what you’re going through may be difficult, especially if you’re worried about upsetting a loved one. However, opening up to others can provide relief, support, and understanding. Keeping your feelings inside may increase emotional burden and make it harder to cope. By opening up and expressing what you’re going through, you can allow others to offer comfort and assistance during this challenging time.
Our Support Line are also here to listen, provide information and valuable support, and help to guide you through this time.
Talking to a counsellor
Talking to a counsellor (also known as engaging in talking therapies) may help you to process what you’re going through and help you find ways to cope with your feelings.
NHS talking therapies are often free. You should be able to access it through your GP, your hospice or your hospital. Your team can let you know what’s available in your area.
Looking after yourself
Taking care of your emotional wellbeing may help you to feel better.
Engaging in self-care activities such as meditation, mindfulness, journaling, or pursuing hobbies that bring you joy can help reduce stress and anxiety.
Keeping active can also help to boost your mood.
There are some forms of media such as books and podcasts that you may find useful. We have recommendations from our supporters here.
Published: May 2023 Next review due: May 2026