Sarcoma Patients in the UK & Ireland (Facebook)
A group for sarcoma patients based in the UK and Ireland offering friendship, and support to past and current sarcoma patients. Join here.
Bone Sarcoma Peer Support
A small charity founded in 2021 by a group of cancer patients including Andrew Sutton. BSPS promotes emotional and mental wellbeing amongst bone sarcoma patients in the UK by facilitating the provision of one-to-one peer support. Find out more.
Chordoma Chat and Cheers Support Group
Meets online on the last Thursday of the month. Email Sylvie for details.
Club HQ
Club HQ is a support group for Hindquarter Amputees (HQAs) resulting from bone cancer. It is an affinity group run by HQAs for HQAs and centres around a Secret Facebook Group and an annual get together.
Free to join, members are active in mentoring new HQAs and providing advice. Anyone wishing to join the group – before or after amputation – should visit the Club HQ website.
Desmoid United UK (Facebook)
A group for anyone suffering from Desmoid Type Fibromatosis tumours and their family, friends and caregivers. People can share their stories as well as receive support from the community. Join here.
Endometrial Stromal Sarcoma Support and Share (Facebook)
A Facebook group for people living with and affected by endometrial stromal sarcoma. You can join here or contact Donna on hinett69@gmail.com
Gynae Sarcoma email forum
The Gynae Sarcoma email forum is open to anyone affected by gynaecological sarcomas. You will be able to use the group to discuss things like diagnosis and treatment, as well as finding emotional support from other members. To join, follow this link.
Macmillan Cancer Support Community
This forum is a place for anyone affected by cancer in any way, be it directly, through a friend or family member, as a fundraiser or as a campaigner. The community has an active discussion thread for people with sarcoma where members can ask questions, share experiences and support each other.
Parents Sarcoma Support Group
An online support group for parents of a child, teen or adult who has (or has had) sarcoma. Email supportline@sarcoma.org.uk for upcoming times.
