When your child is diagnosed with sarcoma, everyday life can feel turned upside down.
But you’re not alone in figuring out the practical side. We’re here to help you navigate work, school, and finances.
Financial support
You may be entitled to some benefits, including:
Turn2Us have a great benefits calculator, and help people gain access to welfare benefits, charitable grants and support services.
Read more about financial support:
- Macmillan Cancer Support offers grants and financial advice
- Young Lives vs Cancer provides financial support for young people with cancer
Your child’s education
Most children’s cancer hospitals have their own schools. This allows for your child to continue their education during treatment. The hospital teachers can stay in touch with your child’s regular school. They can also tailor lessons to your child’s needs and energy levels.
You should let your child’s headteacher know about their diagnosis and the plan for treatment. You and your child can then decide what details to share with their classmates and friends. There’s no need to do this straight away.
Children might also return to their regular school while still in treatment.
Working while caring for your child
Balancing work and caring for a child with sarcoma is challenging, but understanding your rights and having open conversations with your employer can help.
In the UK, you are entitled to unpaid leave to care for your child in emergencies, such as sudden illness or hospital stays. You should communicate openly with your employer about your situation.
Discuss options for flexible working. This could include adjusting your hours, working from home, or job-sharing. Many employers are willing to accommodate these requests, especially when they understand the seriousness of your situation.
Look into your company’s compassionate leave policies. Some companies offer paid or unpaid compassionate leave for employees dealing with serious family illnesses. Check your employee handbook or speak to your HR department.
Consider seeking support from colleagues or employee assistance programs. These resources can provide emotional support and practical advice for managing work and care-giving responsibilities.
Additional support
- Macmillan Cancer Support offers excellent information on workplace rights.
- Young Lives vs Cancer provides a guide for employers.
- Carers UK offers advice and support for those caring for loved ones.
