Sarcoma UK Online Support Group

 

Online support groups give you regular contact with people who share and understand your experiences. Many sarcoma patients and carers feel isolated and alone. You may never have met or spoken to someone else with sarcoma.

Groupspaces

Groupspaces/sarcoma provides you with an opportunity to talk to other patients and carers, learn more about sarcoma, and get support for the issues and challenges you may be facing.

Groupspaces/sarcoma runs three separate support groups:

  • Patients – all sarcomas
  • Patients – with gynaecological sarcomas
  • Carers

How does it work?
Sarcoma patients and carers talk to each other by writing email messages that are sent to all members of the group. Alternatively, you can send a personal email to individual members of the group through your personal profile.

There are guidelines in place to monitor the group which you will have to agree to. The registration process ensures that if you are not a sarcoma patient or carer you will not be allowed to join. The group is moderated by a group of volunteers, who all have a personal experience of sarcoma.

Click here to join Groupspaces

 

Macmillan Cancer Support Community

This community is a place for anyone affected by cancer in any way, be it directly, through a friend or family member, as a fundraiser or as a campaigner. The community has an active discussion thread for people with sarcoma where members can ask questions, share experiences and support each other.

How does it work?
This online forum is a discussion site that allows people to hold conversations through posted messages. Members are asked follow Community Guidelines, Privacy Policy and Terms and Conditions. It is moderated by Macmillan Cancer Support using reactive moderation, which means that they rely on members to alert Macmillan Cancer Support to any inappropriate content or behaviour.

Click here to join Macmillan Cancer Support 
Click here for the discussion thread for sarcoma 

Disclaimer

Groupspaces.com/sarcoma and Macmillan Cancer Support Community are not owned or monitored by Sarcoma UK. Any opinions expressed in this forum by any accounts other than Sarcoma UK account name are those of the individual poster and do not reflect the views of Sarcoma UK. Please talk to your key worker or another healthcare professional if you have detailed questions about your treatment.