You really are not alone. Really.
Sarcoma support groups provide valuable support and information to patients, carers and family members, and provide the opportunity to meet informally locally or online with other people in the same situation.
Local support groups are often run by patients and carers working together with local sarcoma clinical nurse specialists or doctors. These meetings are usually fairly small and relaxed, and take place in venues such as cancer centres, hospitals, or community halls. The format of the meeting may include a talk from an invited speaker on a related topic, discussion and questions, informal chat with other group members, and refreshments. Some groups may organise social events and activities as well as regular meetings.
Online support groups give you regular contact with people who share and understand your experiences. Many sarcoma patients and carers feel isolated and alone. You may never have met or spoken to someone else with sarcoma.
Please note that local and online support groups are run independently of Sarcoma UK.
We do provide support and assistance to local groups, but we cannot take responsibility for their activities, including any representational or campaigning activities they may undertake, information and advice they may give, and any other services they may provide.