Please see below some of the common concerns that people contact us about:
What is cancer?
Cancer starts in our cells. Cells are tiny building blocks that make up the organs and tissues of our body. Usually, these cells divide to make new cells in a controlled way. This is how our bodies grow, heal and repair. Sometimes, this goes wrong and the cell becomes abnormal. The abnormal cell keeps dividing and making more and more abnormal cells. These cells form a lump, which is called a tumour. More about cancers in general.
What is a sarcoma?
Sarcomas are rare cancers that develop in the muscle, bone, nerves, cartilage, tendons, blood vessels and the fatty and fibrous tissues. They can affect almost any part of the body, on the inside or the outside. Read more about sarcoma.
What is a MDT?
Anyone with a suspected sarcoma should be referred to a specialist sarcoma team for confirmation of diagnosis and for a treatment plan of this form of cancer. This is a team of experts from a wide range of healthcare professions called a multidisciplinary team (MDT). A sarcoma MDT will be based at a sarcoma specialist centre. We can help you to find a sarcoma MDT that covers where you live.
How is sarcoma treated?
There are many different types of sarcoma and increasingly they are being treated in different ways. The MDT meeting will plan your treatment, sometimes just surgery is needed, other times radiotherapy is used before surgery. With new advances in cancer care, some types of sarcoma are treated with tablet. Have a look at our (link to ‘what treatment is available’ page)
Can I get written information?
Sarcoma UK has written information that we can post out to you. The information is to help you understand more about Sarcoma and the treatments used. You can also see all the information on our website.
Where can I get support from for myself or my family?
Sarcoma UK can help get you in touch with sarcoma support groups .These offer valuable support and information to patients, carers and family members, and provide the opportunity to meet with other people in the same situation.
There is also online support available for people affected by all types of sarcoma. Online support provides members with the opportunity to get in touch with other sarcoma patients or carers to discuss their concerns over a new diagnosis, treatment options or worries about the future.
All patients with sarcoma should have a keyworker, a health professional who acts as the point of contact for the patient at the specialist centre, usually this is the clinical nurse specialist. You may find it helpful to ring your keyworker for further information about your diagnosis or treatments, they can also refer you for specialist support and counselling services.
Your GP can also provide information about local support services.
Contact our support line on 0808 801 0401.