Finding space to think: Rob’s story | Sarcoma UK
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Finding space to think: Rob’s story

Sarcoma Awareness Month: Life Goes On

For Rob Bell-Johnson, running is much more than a fitness routine. It is a completely necessary space for reflection. The 39-year-old from Whaley Bridge in Derbyshire is currently training to become a personal trainer, a massive career shift after a long and complicated journey with his physical and mental health.

Rebuilding his body has been a gradual process. Rob was born with a club foot, which required early surgery to adjust the tendons in his lower left leg and left that side permanently weaker. Later in life, he faced severe back complications, culminating in major spinal surgery in 2013 for cauda equina syndrome. The operation left him using walking sticks for two years, making his transition into running even more extraordinary.

“Me and running is like eating chocolate with gravy,” Rob says. “It can be done but it is not great. My right side hurts more after I run because I am overcompensating for the left.”

Yet, the physical discomfort is entirely eclipsed by the mental clarity that movement brings. For Rob, every mile covered is a chance to connect with a past that took him nearly two decades to fully confront.

Robert Bell Johnson sits indoors playing an acoustic guitar, looking down at the strings, with warm light behind him.

Being able to run is a complete privilege. Running is my thinking time. Without running, I would be lost.

Robert Bell-Johnson

In 2004, just a day after his 18th birthday, Rob’s world was upended when his mother, Liz, shared the devastating news that she had been diagnosed with sarcoma, a rare form of cancer. She died just over a year later, in November 2005, aged 53.

Liz was a wonderfully outgoing person who was full of joy. Rob still holds onto memories of dancing around the kitchen with her to Dire Straits when their songs came on the radio. She worked in the family picture framing business and was always in the audience watching Rob play bass in his teenage bands.

Losing her at such a pivotal age left a profound mark on Rob, and for many years, he buried the trauma.

“As a teenager, it really rocked my world,” Rob admits. “I did not deal with it well. I bottled it up. I thought I was all right, but I buried it with drink.”

The hidden grief contributed to long, recurring cycles of depression that impacted his life for nearly twenty years. It was only a few years ago, when he chose to stop drinking and laced up his running shoes, that he found a healthy way to process the loss. This year, he fulfilled a life dream by running the TCS London Marathon for Sarcoma UK, transforming his personal reflection into vital support for others.

Robert’s experience reminds us that the emotional impact of a sarcoma diagnosis does not disappear when treatment ends or a loved one dies.

Grief can have a long echo, and it is entirely normal to need time, space, and professional support to find a way forward.

You do not have to navigate these feelings alone.

Samantha Boswell stands by a canal in a GB triathlon suit, hands on hips, looking ahead under a brick bridge.

Read next: Samantha’s story

How triathlete Samantha Boswell rebuilt her fitness and returned to racing after sarcoma

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About Sarcoma UK

We are the national charity for anyone affected by sarcoma cancer. We fund cutting edge research, campaign for better treatments, and work to enable earlier diagnosis so that everyone in our community can live longer and better lives.

About Sarcoma UK

We are the national charity for anyone affected by sarcoma cancer. We fund cutting edge research, campaign for better treatments, and work to enable earlier diagnosis so that everyone in our community can live longer and better lives.

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