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This project is using data sets from Public Health England and Sarcoma UK’s National Sarcoma Survey to look at how a person’s social background can affect’s their sarcoma journey and their route to a diagnosis.

Exploring socio-demographic inequalities in the diagnosis of sarcoma, with a particular focus on deprivation

This project will look at the impact that social inequality has on the diagnostic journey for all sarcoma patients.

Gaining an understanding of the various routes sarcoma patients take before getting to the point of diagnosis and how this can vary by demographic area is key to shaping how sarcoma may be diagnosed in the future. The project will examine the routes of diagnosis and survival factors, focusing on the link between poor diagnostic experiences and poorer treatment, rehabilitation and follow-up experiences.

As part of the study, the researchers will use two existing datasets: Public Health England’s Routes to Diagnosis dataset, which includes all bone and soft tissue sarcoma patients diagnosed in England in 2009-2014 that scrutinises diagnosis routes by deprivation, age, sex, and tumour type, as well as associations between diagnosis route and survival. The second dataset, Sarcoma UK’s National Sarcoma Survey, will provide insight into variations in patient experience of diagnosis and how this links to treatment, rehabiltation and follow-up experiences.

This research will provide evidence which will be used to shape healthcare interventions to encourage and support earlier diagnosis of sarcomas.

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