Privacy statement

At Sarcoma UK we are committed to protecting your privacy. Any personal information we collect from our website and in other communications with you (telephone, letter or email) will be used in accordance with the Data Protection Act 1998 (We are registered under the Data Protection Act 1988 [Reg. Z2577910] with the Information Commissioner’s Office) and other applicable laws. This statement describes how Sarcoma UK collects and uses personal information about people who visit our websites. Refer to 'Sarcoma UK Support Line' to see how your data is collected through our confidential Support Line. The terms of this statement may change, so please check it from time to time.

If you have any queries about this privacy statement please contact the Data Protection Coordinator at Sarcoma UK, 49-51 East Road, London, N1 6AH or email

How do we collect information?

We obtain personal information from you when you enquire about our information, support and fundraising, register with us, make a donation to us, ask a question about sarcoma cancer or otherwise provide us with personal information.

Sarcoma UK Support Line

Confidentiality Policy
The telephone and email services are confidential between you and Sarcoma UK.  If you contact the Support Line you may choose to provide personal information which will only be used for the purposes of dealing with your enquiry.

Any personal information provided will not be passed onto anyone else without your express permission except in circumstances to comply with the nurses’ code of professional conduct or the law.  Examples of this might include anyone reporting potential serious self-harm, if it was felt a child may be at risk or anyone expressing the intention of harming someone else. Concern will be escalated to a member of the senior management team and appropriate agency informed.

Data Protection Policy
Calls are recorded and monitored for training purposes. This is an important part of maintain the information line service. Occasionally another member of the Sarcoma UK team maybe listening in to the call, it will be made clear to you at the beginning of the call. If you would prefer this not to happen please just let us know

All calls and emails are kept confidential to Sarcoma UK and are destroyed securely after use.  If for any reason you wish to have your personal details removed from our records just let us know.

What information do we collect?

The personal information we collect might include name, date of birth, email address, postal address, telephone number and credit/debit card details. We may also collect health information if you tell us about your sarcoma cancer experience or the experiences of a friend or relative.

We also gather general information about the use of our websites, such as which pages users visit most often and which services, events or facilities are of most interest. We may also track which pages users visit when they click on links in Sarcoma UK emails. We may use this information to personalise the way our websites are presented when users visit them, to make improvements to our websites and to ensure we provide the best service for users. Wherever possible we use aggregated or anonymous information which does not identify individual visitors to our websites.

How do we use your information?

You do not have to give us any personal information in order to use most of our website. However any information which you choose to give us via our website may be added to our marketing database, in order to:

  • provide you with the services, products or information you have requested;
  • create a membership for you if you register with us;
  • further our charitable aims, including for fundraising activities.

As part of this, we may analyse the personal information we collect to create a profile of your interests and preferences so that we can contact you in the most appropriate way and with the most relevant information. Where relevant, we may also assess your personal information for the purposes of fraud reduction.

Your choices

You have a choice about whether you want to receive information about our progress and fundraising activities. We will not use your personal information for marketing purposes if you have indicated that you do not wish to be contacted. You can change your marketing preferences at any time by contacting Sarcoma UK, 49-51 East Road, London, N1 6AH, by phone on 020 7250 8271, or email

Do we use cookies?

Please refer to our cookie policy for details of how we use cookies and the type of cookies served through our web sites.

How do we protect personal information?

All of our online forms are protected by encryption. We also use a secure server when you make a donation or payment via our websites. We take appropriate measures to ensure that the personal information disclosed to us is kept secure, accurate and up to date and kept only for so long as is necessary for the purposes for which it is used.

Will we disclose the information we collect to outside parties?

We may also need to disclose your information if required by law (for example to government bodies and law enforcement agencies) or if we have your permission to do so.

We will not sell any information about your web browsing activity.

Your consent

By providing us with your personal data, including sensitive personal data such as on your health, you consent to the collection and use of this information in accordance with the purposes described above and this privacy statement.

Right of access

You have the right to ask for a copy of the information we hold about you and to have any inaccuracies in your information corrected. If you wish to exercise these rights, contact Sarcoma UK, 49-51 East Road, London, N1 6AH, by phone on 020 7250 8271 or email


Our websites may include links to websites run by other organisations. Sarcoma UK is not responsible for the privacy practices of these other websites so you should read their privacy policies carefully.


If your personal details change, please help us to keep your information up to date by notifying us.

We may change the terms of this privacy statement from time to time. If we do so, we will post the changes here so please check from time to time. By continuing to use our websites you will be deemed to have accepted such changes.


Updated: May 2016