The story so far | Sarcoma UK
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The story so far

The year 2021 marked the tenth anniversary of when we formally became Sarcoma UK. Here are some of the key developments in our journey.


  • Sarcoma UK officially launched at an event with National Cancer Director, Professor Sir Mike Richards.
  • Independent equity research firm The Analyst lends its support to Sarcoma UK.

Sarcoma UK officially launched in 2011 at an event with National Cancer Director, Professor Sir Mike Richards.


  • Sarcoma UK launches pilot Golf Ball campaign in Birmingham, aimed at raising awareness of sarcoma among GPs and the public.
  • First National Sarcoma Forum meeting for sarcoma nurses and allied healthcare professionals held in Birmingham and supported by Sarcoma UK .


  • Richard Whitehead becomes first ever Patron of Sarcoma UK and receives an MBE.
  • First Sarcoma UK runner in the London Marathon.

Richard Whitehead becomes first ever Patron of Sarcoma UK and receives an MBE.


  • Survey and report, Hidden Cancer, which focused on gynaecological sarcoma, is published.
  • Launch of the nationwide ‘On the Ball’ campaign targeting GPs.
  • Understanding Sarcoma: A new patient’s guide booklet published.


  • NICE publishes Quality Standard for sarcoma.
  • First patient/ researcher event ‘Talking Research’ held in Manchester with Richard Whitehead.
  • First National Sarcoma Patients survey launched.


  • Sarcoma UK becomes No 10 Downing Street’s Charity of the Year.
  • Launch of Support Line services.


  • First Chris Martin Memorial Quiz.
  • Support Line reaches 1,000 contacts.


  • Clinical trials hub established with over 3,600 page views in the first two months.
  • New sarcoma data published to help understand the disease.
  • Genomics Research Programme announced with first UK grant of £250,000.

Downing Street reception to launch the Chris Martin Fellowship.

Dr Nischalan Pillay, Richard Davidson and Matt Hancock.


  • Sarcoma UK launches a new brand with a fresh, modern look.
  • Downing Street reception to launch the Chris Martin Fellowship.
  • Launch of NHS England Sarcoma Service Specifications.
  • Support Line extends and regulates its hours and introduces text service.
  • Publication of report, The Loneliest Cancer, launches Sarcoma UK’s biggest national awareness campaign
  • Sarcoma UK works with the Royal College of Gynaecologists to change recommendations and consent advice on morcellation for women having a hysterectomy or myomectomy.


  • First parliamentary event to raise awareness of sarcoma among MPs.
  • First winners of the Tricia Moate award for allied health professionals and nurses.
  • First Glitter Ball held in London.
  • The Support Line team doubles in the face of Covid-19.
  • Commitment to Early Diagnosis announced and first major policy campaign published with the backing of MP Jess Philips.
  • Biggest London Marathon in terms of amount raised through the first ever virtual race.
  • Sarcoma UK brought together 20 rare and less common cancer charities in the 20 for 20 fundraising challenge.
  • Sarcoma UK committed to funding three new PhD projects, investing £360,000.


  • Two new organisational and research strategies were launched.
  • We marked our anniversary year starting from Sarcoma Awareness Month in July.
  • An Early Day Motion linked to Sarcoma Awareness Month was tabled by MP Marion Fellows.
  • Jake Quickenden became the first Celebrity Ambassador.
  • Team Gaz cycle ride was our biggest ever fundraiser at £116,253 and wins a Pride of Britain award – Fundraiser of the Year for the London Region.
  • Third genomics research grant of £250,000 awarded to the University of Southampton
  • Sarcoma UK committed £50,000 to funding a major international clinical trial, EORTC STRASS II.
  • The 20 for 20 fundraising challenge returns for a second year.
  • An exclusive screening of the long-awaited James Bond film, No Time to Die, is held in London in support of Sarcoma UK.

Download the Sarcoma UK 10 Year Impact Report as a PDF



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