If you’ve been diagnosed with sarcoma, we know how important it is to have access to the most accurate information.
Sarcoma is rare, so high quality and up-to-date information is vital for people affected by sarcoma.
We are proud to be members of the Patient Information Forum and to have been awarded the PIF TICK.
The Patient Information Forum (PIF) award the PIF TICK to organisations who have passed a robust annual assessment. It shows that our health and patient information has met a number of different criteria and that it:
- is evidence-based and up-to-date
- involves users
- is easy to use
When you see the PIF Tick in our booklets and on our website, it means that we’ve used our information production processes and met PIF’s criteria for trustworthy health information:
- Systems: Information is created using a consistent and documented process.
- Training: Staff receive ongoing training and support.
- Need: Resources meet a genuine need.
- Evidence: Information is based on reliable, up-to-date evidence which is communicated clearly.
- Involving users: Users are involved in the development of information.
- Health inequalities: Information is written to meet health and digital literacy, language and accessibility needs of the target audience.
- Content and design: Information is clearly communicated, easy to access and navigate.
- Feedback: There is a clear process for users to provide feedback.
- Disseminating: Information is promoted to maximise reach.
- Impact: The impact of information is measured.
Information reviewers
We work with healthcare professionals, patients, carers and family members to ensure that people affected by sarcoma are at the heart of the information we produce.
If you’d like to become an information reviewer, please contact our patient involvement team at patient.involvement@sarcoma.org.uk.
