Pre-diagnosis factsheet artwork

Sarcoma UK produces information for people affected by all types of sarcoma cancer.

Through our publications we aim to help people feel more aware of the range of treatment options and support that are available to them, so they can make informed decisions about their own care. 

Our publications are available to download  or you can order hard copies with this form.

Our Patient Guides include Understanding Sarcoma: A New Patient's Guide, Understanding GIST and Understanding Gynecological Sarcomas


How we ensure the quality of our information

Sarcoma UK uses the most accurate and up-to-date clinical evidence when producing new information and we review it every 2 years. We use reliable and trusted sources approved by Sarcoma UK’s Clinical Advisor, Professor Robert Grimer, who is recognised as the leading sarcoma orthopaedic surgeon in the UK. We also have a Professional Review Panel responsible for ensuring all scientific and medical information in any Sarcoma UK publication is accurate and reflects up-to-date clinical practice.

Sarcoma UK also has a Patient Review Panel responsible for ensuring that our information meets the needs of our users and that they are easy to understand. The patient review panel is made up of people who all have personal experiences of sarcoma, as a patient, carer or family member.

A full list of our information sources are available from us, please contact us at or 020 7250 8271.


The Information Standard

Sarcoma UK is proud to be a certified member of The Information Standard. This is a certification programme for all organisations producing evidence-based health and care information for the public. Any organisation achieving The Information Standard has undergone a rigorous assessment to check that the information they produce is clear, accurate, balanced, evidence-based and up-to-date.

All Sarcoma UK information that has been produced in accordance with the scheme is marked with the Information Standard logo. Any Sarcoma UK content that is not marked with the logo is not included in the scope of the standard.

Information Standard Disclaimer

Sarcoma UK is responsible for the accuracy of the information we publish. Neither the Scheme Operator nor the Scheme Owner shall have any responsibility whatsoever for costs, losses or direct or indirect damages or costs arising from inaccuracy of information or omissions in information published on the website on behalf of Sarcoma UK.


How you can support us

Our Patient Review Panel is open to anyone affected by sarcoma including patients, carers, family members and friends. Our Professional Review Panel is open to all health professionals involved in the care of people with sarcoma. If you would like to get involved in reviewing our information please contact us at