There are many things to take into consideration before entering a trial. It is therefore important that you have the right information about taking part. Here is a list of questions you might want to ask your sarcoma team or the team carrying out the trial. They may also prompt you to think of some of your own questions too.

Finding out if trials are right for you 

  • Are there any there any clinical trials available for me?
  • What about phase 1 trials?
  • How might a trial benefit me?
  • What are my alternatives to joining a trial?

Thinking about joining a trial

  • How long will the trial last?
  • What will I have to do?
  • What types of tests will I have and how often will I have them?
  • How much time will I spend in the hospital?
  • Will there be side effects?

How might this trial impact my quality of life?

  • Will I need to take time off work?
  • Will my expenses be covered?
  • Is there anything I am not allowed to do when I am on the trial?
  • What do I do if I want to stop taking part?
  • Who do I contact in an emergency and can I can I call anytime?
  • When and how will I know if the treatment has worked?
  • Can I keep having the treatment if it proves to be effective?
  • How often will I receive check-ups?
  • Who will follow up me up after the trial has ended?
  • Who can I talk to if I need support?
  • How do I get the results or updates about the trial after it has finished?

 

If you have questions about clinical trials or would like to talk to an expert about it, Sarcoma UK's Support Line is here to help, Monday to Friday, 10am - 3pm.  
supportline@sarcoma.org.uk
0808 801 0401