Talking to your clinical team

The only way to join a clinical trial is via to be referred by your clinician. If a trial is appropriate for you, your clinician can contact the team running the trial on your behalf. They will be able to find out more information about the trial and how you can join.

Your clinician will be able to review the information about a clinical trial with all of the things they know about you, your current health and previous treatments. They are also experts on your particular care and pathway and will be able to answer any questions you may have about the trial. You can find a list of questions you may wish to ask on our Questions to ask your Clinician guide.

It’s also important to remember that as sarcoma is a less common form of cancer with many distinct subtypes, there may only be a small number of clinical trials open at one time.

For more guidance on making the decision to join a clinical trial, see our Things to think about and getting support page.

Eligibility

Not all clinical trials are appropriate for every sarcoma patient. Each trial will have a list of eligibility criteria. This is a list of characteristics that all patients must have to be accepted onto the study. These are often related to type of cancer, age, medical history and current level of health. You may also have to have extra tests, such as blood tests or scans, once you have agreed to take part in a trial. This helps to ensure that you meet all the criteria for the trial.

In our Find a Trial section, we provide a small number of key criteria for each trial. Your clinical team will have access to a more detailed list.

Giving your consent

Informed consent is about making sure you understand what you are agreeing to. If you decide to take part in a trial it is a legal and ethical requirement that you understand all of the relevant information about it before agreeing to take part.

Once you have been referred to a trial, the research team will provide you with more detailed information about it. This will include:

  • what the trial is for
  • what will be expected of you when taking part
  • any potential risks and side effects of taking part
  • what the benefits of taking part may be

The research team will give you written information about the trial and answer any questions you have. Once you have agreed to take part, you will then be asked to sign a consent form.

You don’t have to take part in a trial if you don’t want to. You can also change your mind about taking part in a trial at any point, even after signing the consent form or starting treatment.