Online support groups give you regular contact with people who share and understand your experiences. Many sarcoma patients and carers feel isolated and alone. You may never have met or spoken to someone else with sarcoma.
Groupspaces/sarcoma provides you with an opportunity to talk to other patients and carers, learn more about sarcoma, and get support for the issues and challenges you may be facing.
There are three separate support groups:
- Patients – all sarcomas
- Patients – with gynaecological sarcomas
How does it work?
Sarcoma patients and carers talk to each other by writing email messages that are sent to all members of the group. Alternatively, you can send a personal email to individual members of the group through your personal profile.
There are guidelines in place to monitor the group which you will have to agree to. The registration process ensures that if you are not a sarcoma patient or carer you will not be allowed to join. The group is moderated by a group of volunteers, who all have a personal experience of sarcoma.
Macmillan Cancer Support Community
This community is a place for anyone affected by cancer in any way, be it directly, through a friend or family member, as a fundraiser or as a campaigner. The community has an active discussion thread for people with sarcoma where members can ask questions, share experiences and support each other.
How does it work?
Club HQ is a support group for Hindquarter Amputees (HQAs) resulting from bone cancer. It is an affinity group run by HQAs for HQAs and centres around a Secret Facebook Group and an annual get together. Free to join, members are active in mentoring new HQAs and providing advice. Anyone wishing to join the group - before or after amputation - should contact Simon Henson on email@example.com.
Groupspaces.com/sarcoma, Macmillan Cancer Support Community and Club HQ are not owned or monitored by Sarcoma UK. Any opinions expressed in these forums by any accounts other than Sarcoma UK account name are those of the individual poster and do not reflect the views of Sarcoma UK. Please talk to your key worker or another healthcare professional if you have detailed questions about your treatment.