We work with patients, carers, supporters, health professionals and researchers to drive awareness of sarcoma, promote early diagnosis and improve patient experience.
You can also help by sharing your experience as a patient by taking part in a survey from a team at UCLH or in a more involved way by being part of a sarcoma group at the National Cancer Research Institute.
What on earth (or in the sky) is happening in Chichester (pop. 26,795) that brings out such extreme fundraising? We had to find out.
Mikey Neville must surely qualify as one of the most extreme fundraisers we’ve encountered (and we’ve encountered quite a few). When his daughter, Snowdrop, was diagnosed with rhabdomyosarcoma just having started school last September, ‘life was shattered into a million incomprehensible pieces'.
Alex and his family have been tireless fundraisers over the last couple of years, raising over £10,000 through a race night, quizzes, raffles and the London-Brighton cycle by his aunt, Kaye Gawn, in September 2015. “We are now so determined to raise as much money as possible to try and help other people in similar situations to my dad.
Sarcoma UK launches clinical trials hub for people living with sarcoma, offering a range of information and advice on what trials are, if they are for you, how to take part and, crucially, a list of current clinical trials in the UK.
While no stranger to running, the Virgin Money London Marathon will be Piers Hollier’s first. He wants to use his run to get two messages out about sarcoma. “If something doesn’t feel right in your body, see a doctor. You could feel like you’re in perfectly good health, but, like Rachel, my wife, you could have sarcoma”.