Barry Thompson’s recent video update showed us the agony that can be involved in training for a major event such as the London Marathon. It’s a huge distance even for the fittest of us and only the foolhardy would take on a challenge like this without proper training.
Three years ago, Susan, Matthew Clarke’s wife, was diagnosed with embryonal rhabdomyosarcoma (EMRS). ‘It is a great privilege for me to run a marathon in support of Sarcoma UK’, says Matthew. ‘I would like to do my part to raise money to help the research and support that this great organisation provides, as well as to raise general awareness of sarcoma.’
After her neighbour's son, Dean Eastmond, died, Paula felt that she should try to raise funds to support other families affected by sarcoma. ‘I've had to stand in the background and watch how this illness can pull a family apart really‘.
It’s three years since Sarcoma UK launched the Support Line and in that time the team have given timely help and advice to 1,500 people affected by sarcoma. Helan and Sam from the Support Line team look back on the first three years and how the service has impacted the charity and beyond.
A major new piece of research at University College London will bring together 35 scientific experts from across the UK to investigate approximately 1,000 genetic sarcoma samples collected from the Government’s 100,000 Genomes Project.
Part of our remit is to put together information about sarcoma that you can trust. To that end, we’ve launched three new resources with up-to-date, accurate information on lymphoedema, rehabilitation and genomic testing.