Thursday, September 10, 2020

Delays cost lives. We are calling on the Government and NHS to take strong action in a new report that showcases how delays to sarcoma cancer diagnoses are costing patient lives. Our new report, Delays Cost Lives, highlights how poor awareness of symptoms among the public and healthcare professionals, made worse by a complex diagnostic pathway, means that sarcomas often go misdiagnosed or are simply ignored and dismissed.

Thursday, July 30, 2020

Tomorrow (31 July) is the final day to enter the Embroidery Raffle as organised by 32 artists in memory of Chris, Stacey Jones’ husband who died earlier this month.

There are some beautiful pieces of embroidery as well as prints and custom pieces being offered and we’d like to thank all of the artists and their supporters who have been so generous.  Visit Stacey’s Instagram for a sample of some of the work on offer.

If you have made a donation, you can upload your receipt here

Wednesday, July 22, 2020

‘When I was told that I had sarcoma, I went from not panicking to planning my own funeral. It was horrendous.’ Carolyn speaks about the stress of being diagnosed with sarcoma.

Wednesday, July 22, 2020

Sarcoma has a serious negative impact on the mental health of patients and their families. Nine out of 10 patients say that their diagnosis or treatment has a negative effect on their mental health, but a frightening 25% say sarcoma has had a severe effect. Sue Mutch tells us about her experience of amputation, scanxiety and the effect on family.

Tuesday, July 21, 2020

'I remember thinking to myself at what point do I give up? My whole world was just spinning...'

Monday, June 29, 2020

Poor awareness of the symptoms of one of the least understood forms of cancer among the public and healthcare professionals, compounded by a complex diagnostic pathway, is leading to a ‘perfect storm’ of delays to diagnosis that is devastating lives, a new report launched today reveals.

Thursday, June 25, 2020

We are delighted to hear the National Institute for Health and Care Excellence (NICE) has announced today that the tumour agnostic drug entrectinib will be made available for use in England.  

Monday, June 22, 2020

Millions of people shielding from coronavirus (COVID-19) will be advised they can spend more time outside their homes from Monday 6 July, the Health and Social Care Secretary has announced.

Friday, May 29, 2020

A new study part-funded by Sarcoma UK and published in the Lancet has revealed that developing a Covid-19 infection just before or after having surgery can have a major impact on survival – around half of patients with confirmed Covid-19 suffered lung complications after surgery and sadly, 38% of these people died.

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