Sarcoma is a cancer that few have heard of.
Its rarity should not hide the catastrophic effect it can have on those who have experienced sarcoma or their family and friends.
Being little recognised and far from fully understood has led to a plethora of issues which seem unique to sarcoma.
Sarcoma UK launches its biggest national awareness campaign to date with the release of a major new report entitled The Loneliest Cancer and now need your help to help spread the word. The report gives a frank snapshot of what the current sarcoma landscape looks like in the UK, and reveals how sarcoma and a general lack of awareness around the cancer can have a devastating impact on both patients, their families and friends, from diagnosis through to treatment.
With 75% of people not knowing what sarcoma is, Richard Davidson, Chief Executive of Sarcoma UK, believes it’s time for sarcoma to raise its profile. ‘We know the patient journey can be isolating, frightening and traumatic for many. The unfortunate truth is that people only really become aware of what sarcoma is when it touches their life or those in their family.
‘Making both healthcare professionals and the general public more aware of it will help people get a faster diagnosis, obtain better treatment and improve access to any new drugs which will ultimately result in a more positive outcome.’
Although awareness raising has always played a key role in Sarcoma UK’s work, this latest campaign marks a major new effort to keep building on the momentum around the cancer on a nationwide scale. Recent success for the charity include Sarcoma UK’s reception at No.10, the charity’s role in role in NHS England’s sarcoma service specification guidelines and the success of informed patient consent around the use of morcellation for fibroids.
The report also finds:
- Little progress has been made in recent years in terms of developing successful new sarcoma-specific treatments.
- There is hope on the horizon through both ‘tumour-agnostic’ drugs like larotrectinib and innovative research projects, including one involving cancer killing bioactive glass.
- The opening of the UK’s second Proton Beam Therapy centre at University College London Hospital could help expand treatment options within the UK.
How can you support the campaign
- Download and read the report in full then share it with friends and family
- Tell your GP about sarcoma, and share the resources we have with them
- Share the stories of Amelie Callanan, Emily Travis, James and Sarah Read, and Liam Harrison.
- Join us on social media, like, comment and share our content, using the hashtag #TheLoneliestCancer
Sponsored by Eli Lilly and Company Limited.