NCRI workshop
Wednesday, December 5, 2018
  • What are the best ways to manage persistent pain caused by cancer or cancer treatments?
  • What are the short-term and long-term psychological impacts of cancer and its treatment and what are the most effective ways of supporting the psychological wellbeing of all people living with and beyond cancer, their carers and families?
  • How can care be better coordinated for people living with and beyond cancer who have complex needs (with more than one health problem or receiving care from more than one specialty)?

These are just three of the top 10 research priorities for people living with and beyond cancer as decided by you.

By 2030 four million people in the UK will be living with the long-term consequences of cancer, but currently there is very little research on the problems they face and how these can be tackled. To help them live better lives, more focused research is needed.

To determine priorities for research that will help people live better with and beyond cancer, the National Cancer Research Institute and the James Lind Alliance asked you for your help in two UK-wide surveys which attracted more than 3500 responses from patients, carers, and health and social care professionals. Thanks to your responses, they have identified 26 key questions and distilled these down to 10 top research priorities.

This is the first time that clear research priorities have been identified in this area and these findings will shape research priorities for the years to come. Thank you for helping us.

Top living with and beyond cancer priorities in the UK.