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Monday, October 2, 2017

When it comes to being diagnosed with and treated for sarcoma, does it matter where you're from, how old you are, or whether you're a man or a woman?

Dr Richard McNally at Newcastle Upon Tyne Hospitals NHS Foundation Trust wants to find out if social inequality has an impact on the diagnosis, treatment and rehabilitation of a sarcoma patient.  We’re helping him with a £24,305 award. 

We know the journey to getting a sarcoma diagnosis can vary and we know that we need to better understand these differences in order to deliver sarcoma care in the future. It's important to understand how demographic areas affect that journey right through to rehabilitation and follow up 

Dr McNally and the team are using two datasets in their study. The first, Public Health England’s Routes to Diagnosis, includes all bone and soft tissue sarcoma patients diagnosed in England between 2009 and 2014. It includes diagnosis routes by deprivation, age, sex, and tumour type, as well as associations between diagnosis route and survival.

The second dataset, Sarcoma UK’s National Sarcoma Survey, will provide insight into variations in patient experience of diagnosis and how this links to treatment, rehabiltation and follow-up experiences.

We’re deeply excited about this project and what it might lead to in the future. Getting that initial route to diagnosis right will could have a major impact on how people get treated.

Read more about this and other research and studies funded by Sarcoma UK on our research pages.