patient group
Wednesday, February 8, 2017

Sarcoma UK is funding an exciting and ambitious new research project exploring the quality of life of sarcoma patients. The project will develop a tool to help us better understand the unique experiences and challenges that people with sarcoma face.

This tool, called a sarcoma-specific patient self-reported outcome measure (SPROM), will be used within the NHS to inform initiatives to improve the experiences of sarcoma patients.

The researchers are looking for people with sarcoma to take part in a phone interview to explore experiences of being diagnosed, treated and living with sarcoma. Find out how to get involved by downloading this Information Sheet .

Sarcoma UK is proud to have awarded £119,000 to this project through our prestigious Roger Wilson Research Award.

We are pleased that this project has also been supported by the Bone Cancer Research Trust, who have provided £10,000 towards interviews with people affected by bone sarcoma.