How it started... how it's going graphic

Where were you ten years ago? What has changed for you? What does the future hold?

Throughout the year, we will drop in on the people who have shared part of their sarcoma journey with us over the past decade.

Just three little questions with a huge variety of answers. Would you like to share your story? Just answer the three questions, tell us a little about yourself, and send two photos of you, back then and today, to tenyears@sarcoma.org.uk

Lesley Abraham

Lesley Abraham

Lesley was diagnosed with synovial sarcoma in January 2006. She was a founder trustee of Sarcoma UK and pivotal in establishing the Liverpool, Merseyside & North Wales Sarcoma Support Group.

  • Where were you ten years ago?  

I was fighting for 18 months to get diagnosed when I first encountered sarcoma. I was a full-time mum to our two children aged 8 and 9. 

  • What has changed for you?  

I live life in the positive and help in any way I can to get early diagnosis for sarcoma patients. Clear pathways are key. 

  • What does the future hold? 

Since my diagnosis in 2006, the set up of Sarcoma UK has seen a huge improvement to patients diagnosed with sarcoma and much better communication and support especially the Support Line. I see more progress in the future to improve in the good work already done. 

Lindsey Bennister

Lindsey Bennister was Chief Executive of Sarcoma UK from 2010 to 2018.

Emma McCloskey

Emma McCloskey

Emma lives in Warrington and previously worked in the travel sector.  Emma was diagnosed with sarcoma in 2012 and blogged about her experience of treatment and recovery at dizzytix.com. She has recently celebrated her sixth year in remission

  • Where were you ten years ago?  I was enjoying life, working for the national airline and going to amazing places with my lovely man (my now husband)
  • What has changed for you?  
    Four years of sarcoma taking over my life; 9 years ago I was diagnosed with a 7.7lb tumour in my thigh. 8 years ago I had a recurrence in both lungs. Lost my hair 6 years ago, Just as we felt things were settling down, my husband and I eloped to Antigua. 10 weeks later, I had yet another recurrence (in just one lung!) I genuinely felt like sarcoma was going to be my life, forever. I’m hoping for my six-year all-clear this month…! Oh and since my hair grew back, I’ve been pink, purple, teal and grey!
  • What does the future hold? I continue to run the Sarcoma Patients Facebook page and co-run the Merseyside & Cheshire Support group. I no longer work in travel but it’s still a huge passion of mine. Still enjoying life and continuing to do so!

Follow Emma on Twitter and Instagram.

Ian Randall

How It Started Ian Randall

Ian was diagnosed with Ewing’s sarcoma back in 2010. He has two sons and is a professional photographer. He has captured the excitement of many Team Sarcoma events over the years.

  • Where were you ten years ago?
    I was 18 years into a career as a Fire Officer in London. I also had a part-time job as a Fire Inspector and looking after two young boys.
  • What has changed for you?  
    I know I was very fortunate and incredibly lucky to get through and survive my treatment and surgery but I was unable to return to my career. That was a very tough time mentally and emotionally on top of the stress and worry since diagnosis in Dec 2010.
    The treatment has left me with ongoing issues but I have adjusted to what I can and can't do, frustrating at times but after treatment, anything is easier. 
    Now I am a sports and events photographer (which was always a passion) and I know when I need to rest up before and after shooting a game or event so that I don't get excessively tired.
  • What does the future hold?
    I'm VERY optimistic about the future for people affected by sarcoma. The amount of awareness about sarcoma has grown and grown and it's amazing to see. The incredible fundraisers raise so much money for vital research and trials which can only lead to better treatment options and greater survival rates. 

Follow Ian on Twitter, Instagram and online.

Ellie Waters

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