When were you told that sarcoma is a cancer? Were you offered any form of emotional or psychological support? As a carer, have you had to give up employment or education to look after someone? How has sarcoma affected your child’s education?
We want you to tell us so that we can talk to the Government and health services of the future to make your experience better.
We’re looking for at least 1,000 responses for our patient experience survey. Before we can make change happen and improve the lives of everyone affected by sarcoma, we need your help to gather the evidence that tells us what is and isn’t working.
Tell us about your experience of sarcoma. Whether you’re a patient, family member or carer, what you tell us today will help Sarcoma UK shape our policy and campaigning work in the future.
Your voice has already had real impact. A year ago we asked you to tell the NHS how sarcoma could be better treated. Thanks to your efforts, NHS England received five times the number of responses a consultation of this kind normally receives, which in turn helps keeps sarcoma as a priority and on the agenda. Your words gave us a platform to hold the NHS accountable.
Who can fill in the survey?
Sarcoma patients. their family, carers and close friends who have been directly affected can take part. Anyone in the UK can respond.
If you are a parent or guardian of a child with sarcoma, we want to hear from you too.
Why is this important?
We need to show the reality of what life is like for people affected by sarcoma in the UK.
We want to make sure people affected by sarcoma get access to the best care, treatment, and support. The more you tell us, the stronger our understanding of the positive and negatives. We can then work towards tackling some of those issues so those affected by sarcoma in the future don’t go through the same thing.
What do I need to do?
Tell close friends and family about this and encourage them to complete the survey too. We need 1,000 responses for our voice to be powerful.
We know sarcoma is an uncommon cancer, so share this with everyone that you know has been affected by sarcoma, as a patient, carer, parent or guardian.