Local support groups
There are a number of sarcoma support groups around the country and new ones starting up all the time. Sarcoma support groups provide valuable support and information to patients, carers and family members, and provide the opportunity to meet informally with other people in the same situation.
Most groups are run by patients and carers working together with local sarcoma clinical nurse specialists or doctors. Groups are usually fairly small and relaxed, and take place in venues such as cancer centres, hospitals, or community halls. The format of the meeting may include a talk from an invited speaker on a related topic, discussion and questions, informal chat with other group members, and refreshments. Some groups may organise social events and activities as well as regular meetings.
Local sarcoma support groups are run independently of Sarcoma UK. Whilst Sarcoma UK provides support and assistance to local groups, including advice on setting up new groups, the charityis not able to take responsibility for their activities, including any representational or campaigning activities they may undertake, information and advice they may give, and any other services they may provide.
Click on a region below to see support groups in your area.
East Midlands (and eastern counties)
Click to view the local support & Information website here (Paul Robson, Sarcoma Patients Representative for the East Midlands)
Newcastle and Tyneside
North West Sarcoma Group
Lena Richards, Specialist Sarcoma Physiotherapist at the Christie, 0161 446 3795 or 0161 446 3000 (bleep 12539)
Ann Buchan, Sarcoma Clinical Nurse Specialist at the Christie, 0161 446 3094 or 0161 446 3000 (bleep 12906)
Helen Murray, Sarcoma Clinical Specialist Nurse at the MRI, 0161 276 6167 (Pager 07659 537596)
Maxine Cumbo, Specialist Sarcoma Physiotherapist at the MRI, 0161 701 0267 or 0161 276 1234 (bleep 1954)
Merseyside and Cheshire
The Boom Foundation
Scotland - Glasgow
Dawn Currie, Sarcoma CNS, 0141 301 7599
Fiona Murdoch, Maggie's Centre, 0141 330 3311 (Mon-Tues) or 0141 357 2269 (Wed-Fri)
Oxford (inc Thames Valley, south and parts of south west England)
Vicky Wren, Advanced Nurse Practitioner: 01865 738282 or 01865 7411555 / Bleep 173 / email@example.com
Wendy Perrin Associate Advanced Nurse Practitioner: 01865 737861 or 01865 741 155 / Bleep 221 / firstname.lastname@example.org
Helen Stradling Advanced Nurse Practitioner, Trustee: 01865 737507 / Bleep 102
South of England
East Anglia Support Group
Contact: Tony Grover on 07941 434 351 or email@example.com
Bristol and South West England
Yorkshire and Humberside
Sheffield (and surrounding areas)
In November we meet for a fish & chip supper at St Colomb Church Hall
Maxine Eades, Clinical Support Nurse: firstname.lastname@example.org