Local support groups

There are a number of sarcoma support groups around the country and new ones starting up all the time. Sarcoma support groups provide valuable support and information to patients, carers and family members, and provide the opportunity to meet informally with other people in the same situation.

Most groups are run by patients and carers working together with local sarcoma clinical nurse specialists or doctors. Groups are usually fairly small and relaxed, and take place in venues such as cancer centres, hospitals, or community halls. The format of the meeting may include a talk from an invited speaker on a related topic, discussion and questions, informal chat with other group members, and refreshments. Some groups may organise social events and activities as well as regular meetings.

Local sarcoma support groups are run independently of Sarcoma UK. Whilst Sarcoma UK provides support and assistance to local groups, including advice on setting up new groups, the charityis not able to take responsibility for their activities, including any representational or campaigning activities they may undertake, information and advice they may give, and any other services they may provide.

Group Locations

Click on a region below to see support groups in your area.

East Midlands

East Midlands (and eastern counties)

Meets:
Third Tuesday of every month, 5 - 7pm
Venue:
Helen Webb House, 35 Westleigh Road, Leicester, LE3 0HH
More information:

E: emssg@live.co.uk

Click to view the local support & Information website here (Paul Robson, Sarcoma Patients Representative for the East Midlands)

 

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London

London

Meets:
First Weds of the month at alternate sites, 4 - 6pm
Venue:
See below
More information:
Ground Floor Physio Gym in The Markus Centre, Royal Marsden Hospital, London SW3 6JJ. (NB: Easiest access to this department is via the Dovehouse Street entrance)
The Support Group Room , Ground floor, Support and Information Service, UCLH Macmillan Cancer Centre, Huntley Street, London, WC1E 6AG
 
 
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North East

Newcastle and Tyneside

Meets:
First Monday of every month, 7 - 10pm
Venue:
Function Room, Education Centre, Freeman's Hospital
More information:
Contact: Cuth Earl, Group secretary, 0191 520 1824

 

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North West

North West Sarcoma Group

Meets:
On the fourth Tuesday of May, Sept and Nov, from 7pm to 8.30pm
Venue:
Manchester Royal Infirmary (MRI), Seminar Room 1 (adjacent to Ward 1)
More information:

Contact: 

Lena Richards, Specialist Sarcoma Physiotherapist at the Christie, 0161 446 3795 or 0161 446 3000 (bleep 12539)

Ann Buchan, Sarcoma Clinical Nurse Specialist at the Christie, 0161 446 3094 or 0161 446 3000 (bleep 12906)

Helen Murray, Sarcoma Clinical Specialist Nurse at the MRI, 0161 276 6167 (Pager 07659 537596)

Maxine Cumbo, Specialist Sarcoma Physiotherapist at the MRI, 0161 701 0267 or 0161 276 1234 (bleep 1954)

Merseyside and Cheshire

Meets:
Every two months, on the 1st Tuesday
Venue:
Roy Castle Foundation, 200 London Road, Liverpool L3 9TA
More information:
An informal meeting where we hope you will find a comfortable envrionment to chat over tea and cake.  The aim of the support group is to provide information, friendship and emotional support for current and former patients, relatives and carers and anyone affected by sarcoma.
 
Rob Myers Patient:  07710 123960 / rob.myers51@googlemail.com
Lesley Abraham Patient & Trustee:  lesleyabraham@hotmail.co.uk
Sarah Massey, Acting Sarcoma Nurse Specialist:  01517 065 997
 
Merseyside & Cheshire Support Group Website: Click here
 
 
 
 
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Northern Ireland

The Boom Foundation

Meets:
Tuesday 9th September at 7pm
Venue:
Mitre room, Mitre Rehabilitation Unit, Musgrave Park Hospital
More information:

This will be the first Sarcoma Support Group meeting.  If you are interested in attending, please email the The Boom Foundation on theboomfoundation@hotmail.co.uk or call 07540 896470 www.theboomfoundation.co.uk

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Scotland

Scotland - Glasgow

Meets:
Third Wednesday of every month, 2.30 - 4pm
Venue:
Maggie's Centre, Gartnavel General Hospital, 1053 Great Western Road, Glasgow G12 0YN
More information:

Contact: 

Dawn Currie, Sarcoma CNS, 0141 301 7599

Fiona Murdoch, Maggie's Centre, 0141 330 3311 (Mon-Tues) or 0141 357 2269 (Wed-Fri)

 

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South East

East Anglia Support Group

Meets:
Last Friday of every month, 1-3pm
Venue:
The Big 'C' Centre, Norfolk and Norwich Hospital, Colney Lane, Norwich, NR4 7UY
More information:

Contact: Tony Grover on 07941 434 351 or eassn@talktalk.net

Oxford (inc Thames Valley, south and parts of south west England)

Meets:
First Thursday of every month 2-4pm
Venue:
The Oxford Centre for Enablement (OCE), Nuffield Orthopaedic Centre, Windmill Road, Oxford OX3 7HE
More information:

Vicky Wren, Advanced Nurse Practitioner: 01865 738282 or 01865 7411555 / Bleep 173 / vicky.wren@ouh.nhs.uk

Wendy Perrin Associate Advanced Nurse Practitioner:  01865 737861 or 01865 741 155 /  Bleep 221 / wendy.perrin@ouh.nhs.uk

Helen Stradling Advanced Nurse Practitioner, Trustee:  01865 737507 / Bleep 102

www.oxfordsarcoma.co.uk

South of England

Meets:
Meetings alternate between Bournemouth & Southampton. Jan, May & Sept meetings take place in Bournemouth & March, July & Nov meetings take place in Southampton. 2014 dates: Bournemouth– 14th May, 10th Sept Southampton – 12th March , 9th July, 12th Nov
Venue:
Sunrise of Bassett: 111 Burgess Road, Southampton, SO16 7AG (02380 799449) OR The Grove Hotel: 2, Grove Road, Bournemouth BH1 3AU (01202 552233)
More information:

Louise Sharif (Sarcoma Clinical Nurse Specialist) Southampton) / Louise.Sharif@uhs.nhs.uk / 023 8120 6752 / 07769 234 598

Imogen Batty (Nurse Practitioner) Royal Bournemouth Hospital, Castle Lane, East Bournemouth 01202 704938

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South West

Exeter

Meets:
Next date to be confirmed
Venue:
TBC
More information:

TBC

Bristol and South West England

Meets:
Third Monday of alternate months, 4 - 6pm
Venue:
Jones Lang LaSalle (Boardroom), Berkley Square (top left hand corner of square), Clifton, Bristol BS8 1HU
More information:

Contact:

Chris Millman, Sarcoma CNS, 0117 340 3381, christine.millman@nbt.nhs.uk

W: www.bristolsarcomasupport.co.uk

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Yorkshire and Humberside

Sheffield (and surrounding areas)

Meets:
Second Friday of alternate months (Jan, Mar, May, July, Sept, Nov), normally 6.30-8.30pm
Venue:
Large Committee Room, First Floor, Weston Park Hospital
More information:

In November we meet for a fish & chip supper at St Colomb Church Hall

Maxine Eades, Clinical Support Nurse:  maxine.eades@sth.nhs.uk

 

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