Sarcoma UK support group

So, you or a loved one may be recently diagnosed with sarcoma. You have a lot of questions about what happens next and what is happening right now.

Here you’ll find clear explanations of what sarcoma is, how it is diagnosed and the treatment options available to you. 

You may still have some questions.  If you do, we’re just a phone call or email away.

Sarcoma UK Understanding booklets

Just diagnosed?

You've got a lot of questions.

It's important right now to understand your sarcoma better, how it has been diagnosed and know your options for treatment.

There's much to learn - this is a good place to start. 


Sarcoma UK blood pressure monitor and stethoscope

Who will treat me?

It’s important to move quickly after diagnosis to start your treatment.

Your GP will refer you to a team of experts called a multidisciplinary team (MDT). The MDT will support you throughout your treatment to ensure you get the right treatment when you need it.

Treatment is out there. Let’s help you find it.

Sarcoma UK GIST diagram


Your gastrointestinal tract is a long tube that runs through the body from the oesophagus to the anus, passing through the stomach and intestines. Gastrointestinal stromal tumours or ‘GIST’ can develop anywhere along this tract.

Learn more about diagnosis and treatment of GIST right here.

Sarcoma UK Stack of Books

The Sarcoma Index: everything we know

Sarcoma is unusual because it is so rare. And because it is rare, it can be difficult to find good information. Our index presents each sarcoma - from definition to treatment - in one place.   

We'll keep adding what we learn, when we learn it.